Looking back now, I can see when things started to seem odd to me. My husband (59 years old) was recently diagnosed, which was actually kind of a relief. Now the kids and I know what's happening and why. It's still incredibly frustrating to deal with day after day, one moment he's good - almost normal, and the next all hell breaks loose! I'm at home with him 24/7 now, I have employees to do the job, which presents it's own problems of course. I can't retire yet, so need the job and the perks that go with it. It feels like I'm walking a very high tightrope and losing my balance! My kids (4 girls, 1 boy) are great to come around and help out when they can, ( I guess we did something right as parents after all). My son and 3 yr old grandson live with us, which can either be a distraction or a problem, depending on the moment. Needless to say, I'm TIRED! And depressed, and short tempered (don't have time for my kids' petty problems any more). I suffer from Muscular Dystrophy, which makes it hard for me to function physically most days, so we're a great team! Not the way I expected to spend my golden years.

Anyway, sorry this is so long, mostly I just need to vent once in awhile. I have been following this website for some time, researching and learning and decided it was a good fit for me. Thank you for being patient with me, I promise I won't go on and on everytime I post! Take care.

Welcome to the forum. Yes, I'm tired, too. This is a nightmare. I'm glad we have this forum to share our concerns, learn new information and support each other. God bless you and your husband! --Pat

Dear tired, depressed, and short tempered,
Sorry you've had to join the Forum, but welcome. It sounds like you are doing the best you can.
Robin

Never worry about the length of your post, go on as long as necessary. This is a wonderful support group, if I hadn't found this forum I would think I was crazy. I have no physical disability but I get tired of hearing myself say, "I'm so tired". Let the kids help and be sure you pay attention to your own health. This life can be a nightmare, so enjoy all the good times.
Take Care, Gerry

Welcome to the forum. I hope you'll be an active member of this community. It has been a Godsend to so many, including me. Feel free to vent, ask questions, go on and on whenever you want! You'll see there are some MUCH longer posts, and no one cares how long they are. You are always welcome here. Lynn

Bswan,
Welcome to the LBDA forums, venting is what most of do well and we welcome it, This is a community of caregivers and with that comes great advice, the ups and downs of LBD and alot of venting. Feel free to visit often learn from others and teach others as well!

We all understand your frustrations and being tired sadly it comes with the territory!