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 YES, VERY MUCH ALL NEW TO ME.... 
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Joined: Wed Sep 01, 2010 8:44 pm
Posts: 6
Post YES, VERY MUCH ALL NEW TO ME....
Very happy to have found this site and hopefully some sound advice as time goes by. My wife of 50 plus years was diagnosed with LBD in May of this year. We have noticed changes over the last few years but attributed this to age (71). Last march she became ill and i took her to the hospital emergency. They attributed the illness to liver problems and admitted her. The testing continued to no avail but she started to become more and more disoriented and confused, to the point of causing some very serious concerns by her family. Our daughter is a nurse in NH and she contatced the head of geriatrics there who advise to immediatly take her off some of her meds. We could seean immediate return to a more normal her. Shrtly after I took her to the hamilton, On geriatrcs clinic and after hours of testing the daignm oses was LBD. The problem in the hospital was not a liver problem but a reaction to her anti-pshychotic meds.
So now I have become the primary care giver and my patience is being tested but I am learning. I can now see a steady decline in memory loss, reading comprehension and the use of such things as the phone, cooking etc. The MD's reproted her to the Ministry of Transportation and her license has been revoked. I feel we need to make some real changes in our life style and want to seel the house and move to an apartment, this would free up time for me to focus on her and to improve the quality of life by going on short trips etc. I feel if we wait too long, the confusion of a move would be to much for her to handle. To sum up "HELP"
Sam berkhout


Wed Sep 01, 2010 9:50 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3339
Location: Vermont
Post Re: YES, VERY MUCH ALL NEW TO ME....
Hi - welcome, I just wrote you a posting but it got lost in cyberspace.
Anyway, sorry you have to be here. I hope you can get lots of support and help from friends and family.
If your daugher is in New Hampshire, what about taking your wife to the Dartmouth Memory Center? It is fabulous and I wish I'd taken my dad there last year.
Stop by often. You'll make lots of wonderful, supportive friends here. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Sep 01, 2010 10:14 pm
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Joined: Wed Sep 01, 2010 8:44 pm
Posts: 6
Post Re: YES, VERY MUCH ALL NEW TO ME....
THANKS, I'LL EMAIL MY DAUGHTER ASAP


Wed Sep 01, 2010 10:17 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3339
Location: Vermont
Post Re: YES, VERY MUCH ALL NEW TO ME....
I don't know how long it will take you to get an appt. there but we also have a fabulous Memory Center here in Burlington, VT. It takes about 2 mo. I think to get in, but it's a wondeful resource for this community. Good luck!

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Sep 01, 2010 10:18 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: YES, VERY MUCH ALL NEW TO ME....
Sam,
Sorry you've had to join us here but welcome. I encourage you and your RN daughter to read Dr. Brad Boeve's "Continuum" paper published in 2004. You can find it on lbda.org by doing a search. It has a suggested treatment regimen for LBD.
Good luck,
Robin


Wed Sep 01, 2010 10:30 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: YES, VERY MUCH ALL NEW TO ME....
Sam, Welcome to this special group of caring caregivers. If selling your home is in the plan, I'd suggest you do that as soon as possible. Your wife will become more and more dependent on you. We have a small ranch so the house works well for us but with it comes almost 2 acres of mowing, lots of flower beds, and the usual maintenance problems. I could handle all of it except I have to keep track of what Frank is up to. I have found caring for my husband is just about the same as when I took care of our toddlers, except I didn't have to shave them. You mentioned patience, you'll need tons of it. Good luck with your search for care and info, and all the best to you and your wife.

Gerry

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Thu Sep 02, 2010 7:02 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: YES, VERY MUCH ALL NEW TO ME....
Sam,
Welcome to the LBDA forums, I am sure you will find tons of useful information, sorry the need brought you here but am glad you found us.
Its a good thing your daughter is a nurse and contacted someone who knew a little something about what to do for your wife,
I wish you well and Please visit often!

_________________
Irene Selak


Thu Sep 02, 2010 8:23 am
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Joined: Wed Sep 01, 2010 8:44 pm
Posts: 6
Post Re: YES, VERY MUCH ALL NEW TO ME....
Thank you all!


Thu Sep 02, 2010 10:51 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3339
Location: Vermont
Post Re: YES, VERY MUCH ALL NEW TO ME....
My friend, who is a nurse, just had a very good experience taking her MIL to the Memory Center here in Burlington with follow up visits to specialists. Let me know if you want contact info. for it. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Sep 04, 2010 9:58 pm
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Joined: Wed Sep 01, 2010 8:44 pm
Posts: 6
Post Re: YES, VERY MUCH ALL NEW TO ME....
By all means, whatever info youn can provide is much appreciated. Sam


Sun Sep 05, 2010 9:21 pm
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