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 NEW TO LBD 
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Joined: Tue Apr 06, 2010 8:40 am
Posts: 3
Post NEW TO LBD
MY WIFE, 75 YEARS OF AGE, WAS RECENTLY DIAGNOSED WITH LBD. AFTER NEURO TESTS THE DIAGNOSIS IS LBD WITH CAPGRAS SYNDROME WHERE THE PATIENT BELIEVES THEIR SPOUSE HAS BEEN REPLACED WITH ANOTHER FAMILIAR PERSON. SHE IS ON NAMENDA AND THE EXELON PATCH AND HAS BEEN ON ARICEPT AND SEROQUEL AND BOTH GAVE HER UNBEARABLE SIDE EFFECTS. WE LEARNED THAT ANOTHER PERSON HAD TRIED RISPERIDONE AND HAD BEEN VERY SUCCESSFUL IN REMOVING THE CAPGRAS SYNDROME. WE HAVE TRIED THAT FOR ABOUT 3 WEEKS AND NOW SHE IS FREE OF THE CAPGRAS SYNDROME ABOUT HALF THE TIME AND WE ARE HOPEFUL OF FURTHER SUCCESS. ALL THE SYMPTOMS GIVE US A VERY DIFFICULT TIME THOUGH BUT BY TALKING CALMLY THROUGH THEM WE ARE FINDING SOME UNDERSTANDING AND ACCEPTANCE OF HER CONDITION. WE ARE HOPEFUL BUT ARE DESPERATE TO FIND SUPPORT GROUPS OR SOME TYPE OF SUPPORT.


Fri Apr 09, 2010 10:40 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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You can find a list of local support groups on lbda.org. The Alzheimer's Association has lots of support groups as well that may be worth checking out.

Not everyone can take Risperdal so it's good that you know your wife can tolerate this.


Fri Apr 09, 2010 12:53 pm
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Joined: Fri Feb 29, 2008 7:02 am
Posts: 537
Location: MI
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you will also find much info on this forum- or ask questions and somone will share their experiences often
Sharon

_________________
syt


Fri Apr 09, 2010 12:56 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3396
Location: Vermont
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Welcome to the forum. I've found a lot of support and gotten more information than I can read through since I joined a few months ago. It's so nice to have a place where people know exactly what you are going through, because there is always someone here who's had/having a simlilar situation. I wish you both well in dealing with this terrible disease.
Lynn


Fri Apr 09, 2010 10:38 pm
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