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 Hi,I am new here. 
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Joined: Tue Apr 29, 2014 4:27 pm
Posts: 75
Post Hi,I am new here.
Hi Everyone, My name is Leslie and I am new here and hoping to fellowship with others who are going through the same things my husband and I are going through. My husband was diagnosed with Lewy body Dementia about 3 years ago but it was already pretty far advanced. they feel that he may be in the last stage. He is 69 years old and is about 98 % bedfast. He walks with a walker and only gets out of bed 30 minutes at a time for meals and then goes back to bed. His medications seem to help most of the symptoms but he is struggling with choking on saliva. Because of heart issues and such, he is not able to take needed medications for that.

Tue Apr 29, 2014 5:18 pm

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3441
Location: Vermont
Post Re: Hi,I am new here.
Welcome Leslie. Is your husband receiving hospice services? If not, that might be a big help to both of you. Take care, and I'm so sorry for your need to be here. It's a difficult journey, to put it mildly. Lynn

Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Tue Apr 29, 2014 9:21 pm

Joined: Sat May 25, 2013 3:53 pm
Posts: 330
Post Re: Hi,I am new here.
Hi Leslie, Welcome to the forum. If you have any specific questions you'd like answers to, post your question under that topic on the main page and you'll get more feedback from people with answers. Glad you found us!

Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.

Wed Apr 30, 2014 7:23 pm

Joined: Mon Jan 27, 2014 11:10 pm
Posts: 88
Location: Canada, Ontario
Post Re: Hi,I am new here.
Hi Leslie; I am so sorry to hear you are going through this awful time. This a great sight to get answers to you questions. Take care. Anne

Wed Apr 30, 2014 9:48 pm

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Hi,I am new here.
Welcome to the forum, Leslie! I am so sorry you need to be here but it's a good thing you found us. It's a hard enough circumstance but not having people who understand and can share your trials is even worse.

Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Fri May 02, 2014 5:21 pm
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