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 Hello A new Girl 
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Joined: Sun Mar 01, 2009 2:12 pm
Posts: 3
Location: Great Britain
Post Hello A new Girl
Hello, I would be happy to share my story with you. My mother is 64 years of age and we are currently in the process of seeking a diagnosis for a very sudden and rapid onset of acute confusion with hallucinations, occurring mainly in the evening time. She has been seen by a leading psychiatric Doctor and he has diagnosed LBD. However we are awaiting definite confirmation following a head scan and various other tests. The whole family is struggling to come to terms with this awful and unpredictable situation and would benefit from any support and advice we can get. The main question I am egar to ask is, can this condition be eased with medication. Carol


Thu Mar 05, 2009 4:41 pm
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 698
Location: LA
Post Sad for you and yours
Carol, it sounds like you are ahead of things and on top of this awful problem. Your mother is the age of my children, that is why I let out a gasp when I read your message. To answer your question, can this be eased with medicine. I think more and more we are seeing proof that with the proper meds tailored to suit the individual, much relief can be found. It sounds like you have help already and others will chime in telling you about Dr Boeve etc. May I caution you with the standard rule, "Start low and go slow". Watch for signs of damage any meds may indicate and report to your doctor. Don''t be bashful. Present yourself as firm, caring, trusting but needing answers. Continue to learn everything you can and trust your own judgement. I'm sorry.

DrP

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"See this lady, she's 85, but she's nice"


Thu Mar 05, 2009 5:20 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post 
Carol,

As DrP predicts, we will chime in now about reading Boeve! Please find Boeve's Continuum paper on lbda.org. This gives very clear guidance to you and your mother's MD as to how to treat LBD. One can see great improvement with medication, and LBDers can have good quality of life for a long time, if the delicate balance of medications has been figured out.

Usually we don't see rapid onsets of LBD. When the word "rapid" is used, I think first of CJD (Creutzfeldt-Jakob Disease). Perhaps, looking back, however, you and your family can detect signs of LBD much further ago.

Robin


Thu Mar 05, 2009 5:29 pm
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Joined: Wed Oct 08, 2008 10:30 pm
Posts: 976
Location: Henderson, Nv.
Post 
Hello Carol and welcome.

You just got advice from some of the best so just want to add a little welcome. Feel free to jump in and join the conversations. You will learn a lot, laugh and feel better.

Good luck with your journey in the Lewy World, its a difficult one thats for sure.

Dianne

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Dianne C.


Thu Mar 05, 2009 8:00 pm
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Joined: Sun Mar 01, 2009 2:12 pm
Posts: 3
Location: Great Britain
Post 
Thank-you all so very much for all your very expert advice!! I was relieved to read that although at the start of this very difficult pathway, there is some hope for my much loved mum. We are a long way from most of you folks (Great Britain) however its a great comfort to know there are like minded people out there experiencing similar feelings, emotions ect. Thanks again for all being there and ready to talk to me . God Bless Carol .


Fri Mar 06, 2009 8:37 am
Profile YIM

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post 
Carol,
There are quite a few members here from the UK. Have you made contact with the Lewy Body Society, which is based in the UK? (See lewybody.org)
Robin


Fri Mar 06, 2009 1:44 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post 
Carol,
Welcome to the LBDA forums and I do hope you get some answers soon as some of the others mentioned , Rapid is not a word I would use in a decline with LBD either.
Good Luck with finding the answers!

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Irene Selak


Fri Mar 06, 2009 9:01 pm
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