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 Vascular Dementia 
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Joined: Thu Feb 05, 2009 1:31 pm
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Post Vascular Dementia
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Hi,
I am new to this website. My dad has been diagnosed with vascular dementia. It probably is quite different than LBD, but this website caught my attention because the discussions are similar to what my family is experiencing. Does anyone know of a website for vascular dementia? The key difference I have noticed thus far is that with vascular dementia it is like a switch. One minute my dad is sharp as a tack and the next he might have forgotten what I just said two minutes ago. This switch also applies to agression. It is like living with Dr. Jekyl and Mr. Hide. It is very difficult to report the agression because the police feel like you are lying. After the agressive or violent incident my dad can be as cool as a cucumber and be able to answer all of the police and/or emt's questions. I am so scared that one day I will find my mother dead. She is the caregiver and of course he acts out on her the most.
Please let me know if you know of other support groups online. My family does attend a dementia support group once a month, but it doesn't seem often enough for us.


Thu Feb 12, 2009 6:27 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
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Kittan,
Welcome to the LBDA forums, sorry for your need to seek out these types of forums, I checked and I did find one that might be of some help to you and your family, here is the Link!

http://health.groups.yahoo.com/group/de ... roup&slk=1

Also we all understand how the fluctuations can be and how they seem to turn it on and off.
Good Luck!

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Irene Selak


Thu Feb 12, 2009 6:54 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
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kittan,

I didn't think there were any fluctuations with VaD. Sometimes people are initially DX'd with VaD and later diagnosed with LBD! Are you sure your dad doesn't have LBD? Or FTD?

It would make sense to me that there are NO fluctuations in VaD because VaD is a disorder of neuronal death. In LBD, the problem is more about neurotransmitters than neuronal death. It is thought that the fluctuations of LBD are caused by neurotransmitter fluctuations.

When wanting to understand a particular disorder, I think the best first resource is emedicine.com. Here's the emedicine page on VaD (also called Multi-infarct Dementia):
http://emedicine.medscape.com/article/1135408-overview

You might check out the list of symptoms on LBD and see if those better match your father:
http://www.lbda.org/category/3438/symptoms.htm

You've already told us about the dementia and the fluctuating cognition.

Good luck,
Robin


Thu Feb 12, 2009 7:27 pm
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These were my thoughts also, I just had my husbands sister with me the last 2 months and the purpose of her visit was she was DX'd with AD but for me it didn't fit, I made arrangements in NCU for a second opinon and the new DX is Vascular Dementia and she doesn't have any fluctuations, just some memory loss with recent events.

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Irene Selak


Thu Feb 12, 2009 9:35 pm
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Irene -
I'm sorry but I've forgotten if your husband's diagnosis was confirmed upon autopsy?? I would hate to think that some form of dementia is running in that family.
Robin


Thu Feb 12, 2009 10:15 pm
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Joined: Sat Jan 27, 2007 8:38 pm
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My husband was misdiagnosed for two years with vascular dementia. He was properly diagnosed at the Mayo Clinic with LBD. With VaD, the typical pattern is that one will lose some cognitive ability, then plateau at that level for an extended period (weeks, months), until there is another bleed, at which time there is a noticeable drop in cognition, which becomes the new plateau. Fluctuation is not typical of VaD.

Also, VaD will generally not have symptoms of hallucinations, RBD (vivid dreams acted out), etc.

Has your dad had any neuropsych testing? If so, visual-spatial deficits will likely be seen with LBD -- not necessarily so with LBD.

We spent two years watching anything that might cause his blood pressure to rise, worried about a new bleed or leak. As a result, he was not put on proper meds for LBD as early as he might have been.

I'd get a second and even a third opinion. If in doubt, see if his doctor will start him on something like Aricept prophylactically until his disagnosis is confirmed.

Good luck!

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Renata (and Jerome-in-Heaven)


Thu Feb 12, 2009 11:11 pm
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Location: SF Bay Area (Northern CA)
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kittan,
I like Renata's idea of getting an MD to prescribe Aricept or Exelon while waiting to get in to see a second opinion neurologist. That will also be good additional data for that neurologist.
Robin


Thu Feb 12, 2009 11:18 pm
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Joined: Sat Jan 03, 2009 2:59 pm
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robin wrote:
Irene -
I'm sorry but I've forgotten if your husband's diagnosis was confirmed Robin


Robin,
No apology needed, too many people and things to remember here, yes his LBD was confirmed and his sister is nothing like he was even in the early stages and it took us yrs to get a DX that actually fit. He orginally was DX'd with PD and even tho he had many PD symtoms but that didn't fit either, now their Mother had what I thought for many yrs was AD but I do now believe she had the vascular Dementia also.My SIL also has restless leg syndrome and what problems it is causing which he feels is causing some confusion, he said she only sleeps 50% of the night and she is not aware of it.
Time will tell, I can't hardly wait to hear what her doctors at home say (PA) when they get the new DX.
This is so sad once the DX of AD came the other brother talked her into selling her beautiful condo, all her furniture and belongs with the exceptions of clothing and he took over her new car and he placed her in a ALF with a dementia unit, so now what! She is in a place where the lobby is filled with sleeping people very little activities and a weekly trip to Walmart, the brother believes she should only be seeing her GP and him only and forget the specialists, oh well that is a whole other issue, I am sure right about now Iam not his favorite person on earth because I now have upset the apple cart, oh well Tough!!!

On another note here, I am helping someone in the Laguna Niguel and is looking for a LBD Savvy Doctor, I was trying to set her with Kent Peppard and I know he would lead her to the correct doctor but his # has changed, do you know of any LBD doctors out in that area??

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Irene Selak


Fri Feb 13, 2009 8:33 am
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Joined: Thu Feb 05, 2009 1:31 pm
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Wow, thanks everyone for the information. I agree, he should get a 2nd opinion. The only test he has had that I know of was really an evaluation of congnitve skills, memory, etc. Some of the test was in writing and other parts were verbal. Now I really must look into LBD. Maybe it was a sign that I found this website even though I initially thought it might not be applicable. :P


Fri Feb 13, 2009 11:27 am
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