Glad to meet you and happy you are here but sorry it is under this circumstance. You are not alone here as others can relate to your situation. The information and support you will receive are invaluable.
Sad for you that your hubby is failing and you are having to deal with the cruelties that go with these dementia diseases but glad you had the chance to fullfil his "wish list." Your great love for him is very evident and wonderful.
Boy, can I relate to your saga. We also did trade shows, etc. Both of us were executives for other companies and then had our own products/company for 20 years. Worked together 24/7...now we work 24/7 on his disease which is a sad, cruel one...PD/LBD.
The stepkids issue was the same here...dollar signs instead of eyeballs.
But of course they have not visited their dad in years! Not one bit of help.
If you haven't already done so, go to an elderly law attorney. It will be the best money you can spend and can prevent heartache for you in the future with these family members. You must protect yourself and your LO.
My LO goes through terrible times and says things which I know he doesn't mean but it still hurts and alienates family members and friends. It leaves me alone trying to deal with LBD by myself. Many are understanding for a while but many have deserted us. Their loss! Thank goodness a few good friends have stuck it out with us!
"Alone, defensive, distressed, angry, hurtful, maipulative, etc. says it all. If these people could only walk a mile in our shoes they would relate to what we are going through. This is such a difficult, sad, cruel journey we are on and instead of helping, many make it harder on us.
This site is a great place to vent and it will make you feel better. Others will have stories that will make you laugh and forget for the moment how stressed out you are. The relief is welcome.
Stay strong, be as positive as possible and take care of yourself. You will be in my prayers.