Hi Irene, Diann & Robin,
This has been very trying to say the least, I'm just glad that I am here to help them. Mom is still in her own home and she wants to stay there, so I will do everything in my power to respect her wishes. I have 2 caregivers
through an agency that stay with Mom, 1 stays Mon - Thurs and the other
stays Fri-Sun from 9am to 6pm. I have 3 daughters, 2 locally that help
from 6 until bedtime which is usually around 7-730 and I spend the nights
with Mom. I have 2 sisters, the younger of them is 44 and autistic, she was also badly burned on Oct. 29th and we have spent a lot of time in Augusta but she is now home and we were taking her back every week but last trip, they scheduled her appt for 2 weeks. I have thought about day care, but I honestly don't think she has the energy. Is this normal with Most LBD patients or has Mom depleted her energy by just lying around? I am certainly open to suggestions. I have entertained the thought of donating Moms brain to Emory University where her neurologist, Dr Alan Freeman practices. It is a little scary to me because my maternal Grandfather was diagnosed with Parkinsons, but then showed signs of Alzheimers so I would really like to know exactly what is
going on with Mom, and with my Dad having Alzheimers, and my family always said that his Grandmother was"crazy as a bedbug", so I wonder what her problem really was....I just wonder how my brain is.....I take B12 on a regular basis and try to eat well and sleep well, but sometimes, it just doesn't happen.
irene selak wrote:
Hello Mama's girl,
Welcome to the LBDA forums and I am glad that you have found us. I must first say, please except my condolences on your recent loss, to have one parent sick with dementia is hard but to have 2 is unreal. Do I understand you correctly that your Mom is living in her own home? Sounds to me like some services are needed if possible, LBD does present certain issues and one being the ever constant fluctuations, what might apply today might not tomorrow. Are you thinking of a possible doctor change for your Mother if so, maybe we can point you in the right direction, having a Doctor LBD savvy is almost a must with dealing with this. Have you gone to the LBDA website, lots of great information there.Day care might be helpful for your Mother also, it would maybe help her to do things rather sleep all day long.