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 I'm ba-a-a-a-ack! 
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Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post I'm ba-a-a-a-ack!
Sorry, gang. It was too hard after Mom died to keep the conversation going. I even gave my "Meeting of the Minds" ticket that year to a staff member at Mom's dementia unit. It's been two years now and I'm finding ways to get more involved. Advocacy seems to be my niche, though I am having a few cognitive problems myself that affect speech. (just cognitive issues, NOT dementia yet) I've retired, so I have the time to put into it.

I've missed you guys! I can't promise to visit frequently, but know that I think of you often. I even send people to the Discussion Forums when I think it would help.

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Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]


Mon Jun 16, 2014 1:17 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3359
Location: Vermont
Post Re: I'm ba-a-a-a-ack!
Hi Kate - I hope you are doing well! Nice to see you back, Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Mon Jun 16, 2014 1:47 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: I'm ba-a-a-a-ack!
Nice to hear from you, Kate! :P

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Jun 16, 2014 9:05 pm
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Joined: Thu May 15, 2014 10:41 pm
Posts: 74
Location: Phoenix, AZ
Post Re: I'm ba-a-a-a-ack!
Kate - welcome back to the forum! I'm one of the moderators, and relatively new here - wish I'd discovered the forum sooner. Lost my Dad to LBD this year, and now I'm determined to continue to bring awareness to the disease.

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Molly - Forum moderator. My dad's career as a geologist was interrupted by PD and LBD in 2009. I was a respite caregiver for my dad (lived out of state, but visited many times a year). He passed away peacefully in April 2014.


Tue Jun 17, 2014 9:05 am
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Joined: Sat May 25, 2013 3:53 pm
Posts: 261
Post Re: I'm ba-a-a-a-ack!
Hi Kate, Welcome back!

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Sat Jun 21, 2014 11:39 am
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Joined: Sun Mar 30, 2014 5:11 pm
Posts: 84
Location: IL
Post Re: I'm ba-a-a-a-ack!
Nice to meet you, Kate! Like Molly, I'm new-ish to the forum. Your experience with LBD is a great resource for those who write in. Glad that you've recovered enough and are willing to donate your time through advocacy work. Thanks for directing traffic toward the forum! AnneAAA

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AnneA -- Forum Moderator; also daughter, caregiver, and patient advocate for Jean, who died of LBD in January, 2013, at age 91.


Sun Jun 22, 2014 3:08 pm
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