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 Frequently Referenced Resources on LBD 
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Joined: Wed Aug 06, 2008 2:24 pm
Posts: 40
Post Frequently Referenced Resources on LBD
ARTICLES AND PUBLICATIONS
(listed alphabetically)

An Introduction to LBD – for the newly diagnosed patient
By LBDA
English version: http://www.lbda.org/feature/1942/an-int ... mentia.htm
Spanish version: http://www.lbda.org/feature/2012/spanis ... mentia.htm

Brain Autopsies and Brain Donations
By LBDA
http://www.lbda.org/feature/1949/brain- ... ations.htm

Continuum - Dementia with Lewy Bodies, 2004
By Bradley F. Boeve, MD
http://www.lbda.org/feature/1347/diagno ... bodies.htm

Continuum – Dementia with Lewy Bodies, 2007
By Douglas R. Galasko, MD
http://www.lbda.org/feature/1727/contin ... d-2007.htm

Current Issues in LBD Diagnosis, Treatment and Research
James E. Galvin, MD, Bradley F. Boeve, MD, John E. Duda, MD, Douglas R. Galasko, MD, Daniel Kaufer, MD, James B. Leverenz, MD, Carol F. Lippa, MD, Oscar L. Lopez, MD, representing the Scientific Advisory Council of the Lewy Body Dementia Association.
http://www.lbda.org/sites/default/files ... late_0.pdf

Facts About LBD
By LBDA
http://www.lbda.org/feature/1925/facts- ... ochure.htm

LBD Requires a Comprehensive Treatment Approach
An editorial by Dr. Brad Boeve, member of LBDA€s Scientific Advisory Council
http://www.lbda.org/content/lbd-require ... t-approach

Medical Alert Wallet Card
By LBDA
http://www.lbda.org/content/lbd-medical ... allet-card

Mind, Mood and Memory
Editors: Rebecca Martine, APRN, CS, BC, John Duda, MD
Parkinson’s Disease Research and Education Clinical Center, Philadephia VA PADRECC
http://www3.parkinson.org/site/DocServe ... ?docID=191

Understanding Behavioral Changes in Dementia
By Tanis J. Ferman, PhD, Mayo Clinic, Glenn E. Smith, PhD, Mayo Clinic, and Briana Melom, MA, LSW
http://www.lbda.org/content/understandi ... s-dementia

Ten Things You Should Know about LBD
By LBDA
http://www.lbda.org/feature/2062/10-thi ... ut-lbd.htm

The Lewy Body Digest – LBDA’s Newsletter
http://lbda.org/content/lewy-body-digest


BOOKS ON LBD AND CAREGIVING
http://www.lbda.org/category/4114/books ... giving.htm


EDUCATIONAL VIDEOS:

LBDAtv
http://www.lbda.org/LBDAtv


Mon Feb 16, 2009 10:19 am
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 728
Location: LA
Post frustrations galore
While waiting for a new physical threrapist to come, I printed the article, "!0 Things You Should Know about LBD", knowing full well that the sweet young thing will never have heard of this condition in which we live.

Wish me luck.

Dorthea

_________________
"See this lady she's 85 but she's nice" When I joined in 2007 this is the way Mr B. introduced me to the people only he knew,he added "You need to listen to her" he was 89 then, death due to Lewy Body Dementia/pneumonia in 2009.


Thu Apr 02, 2009 12:27 pm
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Joined: Sat Dec 13, 2008 12:52 am
Posts: 118
Location: BC, Canada
Post 
Wishing you great luck in this Dorthea! I have been very fortunate so far with the physical therapist, occupational therapist and Henry's home worker - they all know about LBD. I am very surprised each time a new one comes to the house - even the pharmacist knows about it, mind you one of them didn't and another one came over and brought him right up to snuff on what it was all about. We live in a fairly small community but it is sure getting around, I pray that it will go much farther though.

Let us know whether your new PT does know or not please.


Thu Apr 02, 2009 1:02 pm
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 728
Location: LA
Post Dee, all the resources at your fingertips.
"Time waits for no man". Robin can get the next one for you, Dee.. Go to the top of the page and work down.

DrP

_________________
"See this lady she's 85 but she's nice" When I joined in 2007 this is the way Mr B. introduced me to the people only he knew,he added "You need to listen to her" he was 89 then, death due to Lewy Body Dementia/pneumonia in 2009.


Tue Apr 14, 2009 4:57 pm
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Joined: Wed Oct 08, 2008 10:30 pm
Posts: 976
Location: Henderson, Nv.
Post 
Dorthea,

Great idea! Going to print one out too. Good thing to have on hand.
We started a lady who comes in a few days a week in the a.m. to help my hubby shower, shave, dress and take a little walk, then she helps me for an hour, folding clothes, etc. ... she had not heard of LBD...I sat her down and had her read some of the info here and some of the posts so she will know what we are up against. Will also give it to the mgr of the agency for future reference.

Good thoughts to all this evening. :)

_________________
Dianne C.


Tue Apr 14, 2009 10:44 pm
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