I hope you can help me with a question or two. My Mom has has LBD for about 5-6 years. It's hard to be exact about when it began. Since her diagnosis a couple of years ago I have been reading about the symptoms etc. The progression is what I am confused about. My LO has been putting along on kind of a plateau. She has had some decrease in her bladder control, but basically not worsening. This past week has been terrible. She was up during the night for 4 nights now She has never done this before. She went to bed at 10 last night, up at midnight, right back in bed, up at 5:30 AM, right back to bed, up at 1PM, showered, ate, sat on the couch and now been asleep for almost 5 hours. She was weak today and very shakey. This is a very BIG change. I am concerned that we might need to get a referral for visiting nurses or hospice. We have an appointment tomorrow and hope I can get her there. Do LBD patient have terrible days and bounce back, or is this sudden decline to be expected? I just need advice.