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 Update On My Dad 
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Joined: Mon Sep 09, 2013 9:16 pm
Posts: 29
Location: Texas, USA
Post Update On My Dad
Dad has stopped eating and is drinking only very small sips when he is awake, which isn't very often. He is "asleep" 99.99% of the time now. Hospice is keeping a very close eye on him. When the hospice nurse came this morning she ordered a catheter. She told Mom that the best that we can do for him now is to just keep him comfortable and make sure he is in no pain. He has reached the point where nothing further can be done for him. He is no longer reacting to touch or to our voices.

My husband drove us to the NH at about 10:00 this morning, through the slush and snow. We all visited for about 20 minutes, then we left Mom there. I went to pick her up at 4:00 this afternoon and we stayed until about 5:00. I know she wanted to stay the night, but she also admitted that she couldn't stay at the facility 24 hours a day. Someone from hospice will be checking in on Dad during the night, probably the night nurse, and the hospice chaplain will also be stopping by to visit him. The nurses at the NH will call tonight if anything changes.

Dad had an appointment scheduled for tomorrow morning to have the staples removed from his hip surgery incision. I mentioned this to the nurse this morning, telling her that I didn't think he'd be able to make the appointment...The appointment was cancelled and one of the NH nurses was planning to remove the staples. I'm sure that won't be happening now. I hope not.

I appreciate all of your prayers and thoughts for my Dad.

Love your loved ones while they're still with you. This disease moves so fast sometimes and the illness or accident that finally brings the end closer can come out of nowhere.

Mon Feb 03, 2014 10:06 pm

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3441
Location: Vermont
Post Re: Update On My Dad
Big hug to you tonight. Hang in there. Lynn

Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Mon Feb 03, 2014 11:16 pm

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Update On My Dad
You and your family are in my prayers. God bless!

Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Wed Feb 05, 2014 1:21 am

Joined: Mon Nov 25, 2013 7:33 pm
Posts: 53
Location: Pennsylvania
Post Re: Update On My Dad
God bless you, your family and your father.

Marian, daughter of mom [82] diagnosed with LBD November 2013 after 7 years of a textbook course of this disease. Passed on January 26, 2014 following a week of home hospice care.

Wed Feb 05, 2014 7:23 am

Joined: Sat May 25, 2013 3:53 pm
Posts: 330
Post Re: Update On My Dad
It is such a difficult time. Hang in there and give each other lots of hugs!

Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.

Fri Feb 07, 2014 2:06 am

Joined: Tue Apr 29, 2014 4:27 pm
Posts: 75
Post Re: Update On My Dad
Praying for you and your dear family.

Mon May 26, 2014 9:29 pm
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