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 How Do I Cope? 
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Joined: Mon Mar 24, 2014 9:58 pm
Posts: 2
Post How Do I Cope?
I recently found out that a close family member was diagnosed with Lewy Body Dementia and I'm having trouble understanding it. How have people dealt with the diagnosis and finding a way to remember the good times?

Tue Mar 25, 2014 2:27 pm

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: How Do I Cope?
Chloe, in the nine years after my husband's diagnosis it was very hard to remember all the great years we had because Lewy was in the way---always being front and center. It was not until after his passing last winter that I was able to think of the healthy years and to cherish the memories. Maybe it's because it was just the two of us for so long and the experience was so traumatic. When he thought I was an impostor and was abusive it was very hard to see the man I married, although my love for him never faded. Continue to love, understanding that your loved one's brain is damaged through no fault of his/her own. You are in my prayers.

Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Wed Mar 26, 2014 10:53 am

Joined: Mon Jan 27, 2014 11:10 pm
Posts: 88
Location: Canada, Ontario
Post Re: How Do I Cope?
Hi Chloe; If you believe in a higher power (God) it can really help. Find a way to make some time just for yourself like having the LO with LBD go to a daycare program so you get some time to yourself. These two things have really helped me to cope so far. My husband has been having memory loss, wild dreams, hallucinations, etc. for over 6 years. Good luck with your caregiving. Anne

Wed Mar 26, 2014 4:22 pm

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3441
Location: Vermont
Post Re: How Do I Cope?
When you are so busy and caught up in the day to day caregiving, managing the person's illness, house, finances, whatever, there doesn't seem to be time to do much remembering! I think after my dad died and the responsibilities were fewer I was able to focus more on what a fun loving wonderful man he was. Take a deep breath and try to take some time for yourself. Lynn

Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Wed Mar 26, 2014 8:47 pm

Joined: Tue Apr 29, 2014 4:27 pm
Posts: 75
Post Re: How Do I Cope?
Chole, I love the song "one day at a time". MY mom always told me to just take one day at a time and pray my way through each of them. It does make life so much more bearable. Praying for you and your loved ones.

Sun May 25, 2014 4:04 pm
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