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 Mom's admitted to hospice 
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Joined: Fri Jan 13, 2012 11:51 am
Posts: 43
Post Mom's admitted to hospice
Well, it's been a rough couple weeks.
After evaluations from PT and VNA, they decided that it's really not safe for mom to walk anymore. It was taking a strong 2 person assist to get her from bed to commode, and is no longer able to follow directions from PT. Since her pt was no longer progressing, they recommended hospice. She is now completely immobile, although the CG"s do try to get her out of bed into the chair a few hours a day. Her appetite is still sporadic, and speech is limited to yes and no answers (and I don't think they are always right...just conditioned)

How much longer can she go on this way?


Sun Jun 10, 2012 9:29 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Mom's admitted to hospice
Someone can last for months or years this way!


Sun Jun 10, 2012 10:51 am
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: Mom's admitted to hospice
so sorry you are going thru this... i hope with hospice involved now, it will lesson your worries...
cindi

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sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 11-13,released to memory care..


Sun Jun 10, 2012 12:36 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Mom's admitted to hospice
Has their recommendation for hospice been confirmed by her doctor? Have you accepted this option?

My heart goes out to you. What a very sad and painful situation for you.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Sun Jun 10, 2012 2:09 pm
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Joined: Fri Jan 13, 2012 11:51 am
Posts: 43
Post Re: Mom's admitted to hospice
My brother and I have accepted the idea of hospice. My dad is welcoming of the hospice services, although I think he's still in a bit of denial of the overall concept. Her primary doc had suggested hospice in january, but we didn't persue it until she was falling several times a week at the end of april. We had begun the eval then when she had yet annother fall and fractured her hip.
I just hope they can give my dad some emotional and cg support.
Thank you all ford your support.
Heidi


Sun Jun 10, 2012 8:52 pm
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Joined: Tue Aug 30, 2011 1:36 pm
Posts: 48
Post Re: Mom's admitted to hospice
Hey Heidi, I'm so sorry to hear of your mother's decline. We are beginning hospice with my mom this week too. Prayers for our dads. Take care.

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Donna G, 52, helped Dad take care of Mom, who died at home surrounded by family in June 2012.


Mon Jun 11, 2012 12:03 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3363
Location: Vermont
Post Re: Mom's admitted to hospice
Hospice is great because they give a lot of support to family members as well as to the patient. We had a wonderful hospice nurse who really helped us understand a lot about final stages, which made it better for us. It's a tough thing to go through so having good support is important. All the best, Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Mon Jun 11, 2012 8:58 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Mom's admitted to hospice
Heidi,
Just to be sure you know...hospice doesn't provide 7x24 or even 5x8 caregiver support. They do provide aides to assist with bathing, and many hospice agencies have volunteers who come to read, play music, sing, whatever.
Robin


Mon Jun 11, 2012 1:06 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Mom's admitted to hospice
Robin, thank you for the reminder. A lot of people are very disappointed to find that they won't be getting around-the-clock care.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Jun 11, 2012 2:08 pm
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Joined: Fri Jan 13, 2012 11:51 am
Posts: 43
Post Re: Mom's admitted to hospice
Thanks everyone!
I am aware that hospice care giving is limited. We were very lucky to have mom qualify for 5 days of personal care for 90 min/day. I think what I am hoping for most from hospice is some social work support for my dad. I hope they will help him come to terms with mom's condition and prognosis and help him deal with that. He has always been reluctant to take advice from "the kids" but is very willing to listen to "the professionals". Even his primary doc said "as right as you may be, he will listen to hospice before you". I am lucky that they have a PCP who knows them both so well, and is concerned with both of their well being and quality of life. I have already spoken to the hospice social worker as well.

I have already spoken with the nurse, who was also the same one assigned to her before her fall. She seems to think mom is cognitively back to her baseline before the fall, which was great news! She is going to re-assess her for mobility this week. She seems to have her legs give out without notice similar to many other LO's I've been reading about lately. Because of this, the VNA nurse had labeled her unsafe to be mobile. I guess we"ll wait and see!


Mon Jun 11, 2012 3:29 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Mom's admitted to hospice
You have a wise PCP in your corner!


Mon Jun 11, 2012 3:47 pm
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Joined: Fri Jan 13, 2012 11:51 am
Posts: 43
Post Re: Mom's admitted to hospice
Robin, my parents have shared the same PCP for about 20 years and he is wonderful! He truly knows them both as people, not just patients. When i called him a couple weeks ago with some questions, he had so much insight to my dad's character and personality, and what dad could realistically do for mom. He calls dad to check in on how things are going.
One of the things in this awful situation that I am thankful for!

The hospice social work visit is today. Upon advice from dad's pcp I will not be there. He has a feeling that dad would be more forthcoming about their needs if I weren't there. Dad has a tendancy to sugar coat things "for the kids". I'll get the update from SW this afternoon.


Tue Jun 12, 2012 6:54 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3363
Location: Vermont
Post Re: Mom's admitted to hospice
Heidi - your dad sounds like a very caring man, very thoughtful of others, much like my dad was before disease took over. I hope things go well today. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Jun 12, 2012 10:17 am
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Joined: Fri May 28, 2010 4:46 pm
Posts: 119
Location: Salem, Oregon
Post Re: Mom's admitted to hospice
Heidi,
I just sent you a private message before I got on the forum and saw this. I think my mom was where your mom is in terms of disease progression starting last January when she got a bad cold which we thought was pneumonia. I'm sorry to hear of your mother's decline. It's so hard to see, and it's hard to know how to best support our dads.
Diana


Wed Jun 13, 2012 5:58 pm
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Joined: Fri Jan 13, 2012 11:51 am
Posts: 43
Post Re: Mom's admitted to hospice
Diana,
I just replied to your message. Thanks for the insight! I appreciate it!


Wed Jun 13, 2012 6:35 pm
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