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 New Symptom 
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post New Symptom
Recently my MIL started having a stiff back upon waking up for the day. She has no flexibility whatsoever. It takes me a while to get her into a sitting position. She is pretty much non-verbal except for her scripts, so she could not tell me if she was in pain. Has anybody else encountered this? This is not every day, just on occasion.

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Sun Feb 05, 2012 12:52 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3123
Location: Vermont
Post Re: New Symptom
Has anyone mentioned ataxia? My dad had that, and it was impossible for him to bend over, reach down, pivot the top half of his body at all, etc. because his whole core was so stiff. I don't think it was painful but it made most ADLs impossible. Then again, his ability to experience and communicate pain was all mixed up. When he should have been in pain he said he wasn't, then in the end every body part seemed to be extremely sensitive and painful so he was on a lot of morphine. Thank goodness for the morphine!
I'd report this to the dr. in case there is something they may be able to do. Good luck, Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Feb 05, 2012 4:52 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3178
Location: WA
Post Re: New Symptom
Does she take Sinemet or another levodopa compound? I has made a world of difference for my husband over the years. Movement is very difficult for him, now, even with the Sinemet but he would have been totally immobile years ago without it. His neuro has increased it several times.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sun Feb 05, 2012 5:05 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: New Symptom
This sort of extreme rigidity is very common in a similar disorder, PSP (progressive supranuclear palsy). What those in our local PSP support group do is leave the person in bed or reclined as much as possible. There is something called a "geri chair" that allows for this sort of reclining position. Many use a Hoyer lift to move the person from bed to a reclined chair.

My father was mute the last 18 months or so of his life. The last several months he was unable to communicate at all -- no eyelid blinks, no squeezing hands, no fingers, no foot movement. We used expressions on his face and the color of his face to determine if he was in pain or not.


Sun Feb 05, 2012 5:46 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3178
Location: WA
Post Re: New Symptom
robin wrote:
My father was mute the last 18 months or so of his life. The last several months he was unable to communicate at all -- no eyelid blinks, no squeezing hands, no fingers, no foot movement. We used expressions on his face and the color of his face to determine if he was in pain or not.

Robin, that must have been very upsetting!. :cry:

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sun Feb 05, 2012 6:50 pm
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