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 what causes the fluctuating symptoms? 
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Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post Re: what causes the fluctuating symptoms?
Yup. It took Mom's Seroquel more than a month to kick in, but it did and things got a bit better.

Talk about fluctuating symptoms. Mom just blew me away on Sunday. She was incredibly alert, cheerful and really seemed to be comfortable with her surroundings. This after a very challenging Saturday. I'd expected her to sleep all through Sunday. I took advantage of it and we watched "Holiday Inn" together and had a truly good time. it was her decision to stay at the nursing home and watch the movie. When I asked her whether she wanted to go out or not, and explained that it was the Sunday before Christmas and everything would be crowded, she made the decision to stay in.

Then, yesterday, the pendulum went the other way and she was back to barely responsive, though she still is sitting up most of each day. I so wish last Sunday had been Christmas Day and we had a "with it" Mom just for the holiday. I know it is too much to hope for to have a repeat Sunday, but it would be oh so nice!

Days like last Sunday are such rare blessings. I wish others in the family had been there to experience it.


Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]

Tue Dec 20, 2011 9:08 am

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3441
Location: Vermont
Post Re: what causes the fluctuating symptoms?
Hold onto to those positive times, especially as the road ahead gets rockier. You can make that good day into Christmas in your own head Kate, and don't worry about what happens on Dec. 25th. What happens, happens, and you know you had at least that one very good day. Best wishes, Lynn

Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Tue Dec 20, 2011 10:38 am

Joined: Thu Dec 08, 2011 5:23 pm
Posts: 14
Post Re: what causes the fluctuating symptoms?
Lynn, she hasn't seen her doctor since this period of depression began. She has had depression off and on since this whole thing started, but since it has come and gone like everything else, sometimes very quickly, the doctor was reluctant to give her anything. This time, however, I think I WILL make an appointment because it has been more severe and doesn't show signs of letting up as it usually does. I say make an appointment, because as long as she's able to leave the ALF she prefers going to her regular doctor (as do I) rather than using the doctor at the facility.

Tue Dec 20, 2011 8:26 pm
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