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 What was the very FIRST symptom of LBD in ur LO 
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: What was the very FIRST symptom of LBD in ur LO
Lynn, pseudodementia is not dementia at all. It is a depressive condition with symptoms similar to dementia. For example, someone with bipolar disorder may exhibit pseudomentia. (At least that is what I learned when I googled it. 8) )

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Tue Mar 22, 2011 12:52 am
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Joined: Mon Feb 21, 2011 9:55 pm
Posts: 355
Post Re: What was the very FIRST symptom of LBD in ur LO
thanks a mllion Dorothea, much appreciate it Ger x

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cared for Dad who passed away on January 28th 2013 R.I.P.


Tue Mar 22, 2011 5:51 am
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Joined: Fri Jan 15, 2010 9:33 pm
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Location: Vermont
Post Re: What was the very FIRST symptom of LBD in ur LO
Ah - thanks for the clarification. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Mar 22, 2011 9:45 am
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: What was the very FIRST symptom of LBD in ur LO
I wish at the time they had diagnosed Ken with pseudodementia they would have offered an anti-depressant. He showed none of the typical depression signs, but later, what I assumed was part of his dementia symptoms (sitting and staring, apathy, personality change) was diagnosed as depression. Unfortunately for us it took Ken falling off of a 6 foot retaining wall onto concrete below to bring attention to the problem. As he laid there while we waited for the paramedics he just kept saying "Let me die, let me die, I don't want to live like this." LONG story short, those injuries were the beginning of a fast spiral downward, deep into Lewy land. He was put on Zoloft during that hospital stay and it's working well for him, I think. Sher

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Tue Mar 22, 2011 9:57 am
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Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post Re: What was the very FIRST symptom of LBD in ur LO
According to the doc and a number of articles I've read, the Parkinsonism sort of signs came first for Mom more than thirty years ago. She had tremors in her hands and, eventually, her chin. They became much more pronounced over time, but gradually. (This is something that worries me because I have very noticable tremors in both hands.) My understanding is that this is an early sign, but neurologists tell me not necessarily.

Then, the next sign is something my sis and I disagreed over at the time. Mom became very confused in shopping malls she'd visited for years - since they were built. Though my sister was comfortable leaving Mom to fend for herself, I worried and stayed close to Mom. That was between 10 and 15 years ago, getting bad enough for Sis to take seriously about 7 years ago.

Thanks for asking the question! I'm very curious.

Kate

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Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]


Tue Mar 22, 2011 2:20 pm
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Joined: Wed Mar 09, 2011 12:22 am
Posts: 75
Post Re: What was the very FIRST symptom of LBD in ur LO
LTCVT wrote:
Pseudo-dementia sounds to me like "being a little pregnant." Perhaps a term like "early dementia" or "pre-dementia" with some list of symptoms on a continuum/timeline would be a bit more palatable. Lynn


What the Dr said to me: "He's faking it but does not know he's faking it."

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~~Debra, 52, wife to Chris, 64 DX Vascular Dementia 9/10; Alz 10 or 11/2010; Pseudo Dementia 01/11; LBD in 03/11..Was at home until 4/29, 2011, now in a Alz fac./dementia unit.
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Tue Mar 22, 2011 5:45 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: What was the very FIRST symptom of LBD in ur LO
dareitz wrote:
What the Dr said to me: "He's faking it but does not know he's faking it."
I've never heard anything so ridiculous in my life! :roll:

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 22, 2011 6:11 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
Post Re: What was the very FIRST symptom of LBD in ur LO
Debra,
I took great delight in sending a copy of my father's neuropathology report to the MD who said my father suffered from rheumatoid arthritis and that's why he fell.
Robin


Tue Mar 22, 2011 6:16 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
Post Re: What was the very FIRST symptom of LBD in ur LO
Jeanne,
Did someone say that exclusivity to LBD was a requirement for core features? I don't think this is the case for two of the three core features. Fluctuating cognition is a core feature that seems exclusive to LBD.
Robin


Tue Mar 22, 2011 6:20 pm
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Joined: Fri Dec 31, 2010 3:07 pm
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Location: Minnesota
Post Re: What was the very FIRST symptom of LBD in ur LO
dorthea wrote:
BTW, RBD is a "suggestive feature" of LBD (according to the diagnostic criteria). Since it occurs in other disorders (like PD and MSA), it's not a core feature/symptom.
Robin

Robin, I thought that was what you were implying in this statement Dorthea quoted above.
Jeanne

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Tue Mar 22, 2011 7:27 pm
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Joined: Wed Mar 02, 2011 1:11 pm
Posts: 27
Location: Michigan
Post Re: What was the very FIRST symptom of LBD in ur LO
My husband, a teacher, couldn't remember how to use Word, even though I'd show him time and time again. He began having trouble following TV shows, and then one day he fell and couldn't remember how to get up. That started two years of tests.

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Wife of a 60-year-old LBD patient who was diagnosed in 2003.


Wed Mar 23, 2011 9:22 pm
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Joined: Mon Mar 21, 2011 11:26 pm
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Location: St Pete Beach, FL
Post Re: What was the very FIRST symptom of LBD in ur LO
Hi everyone,

It has been so interesting reading people's posts here. For many years my sister and I have been critical of my father's poor financial and personal decisions. We were not living in the same State as him (since his diagnosis and significant deterioration I have moved back), but when we would visit him we would question him about his decisions. He would get angry at us but also never give us rational responses. His use of language was poor and he would mis-interpret our statements and go off on a response without understanding what we were saying. Given his anger (he has always suffered from anger problems) we would never push the issue. We would just leave frustrated and talk among ourselves about what bad decisions he was making. Now in hindsight we realize his executive functioning was deteriorating as a result of the dementia. LBD is very different in this regard from AD I now realize.

The good news is that he has accepted my sister and I taking power of attorney and managing his affairs for him now, though he is still in denial of his diagnosis and does not want to talk about it.

The lesson here may be that for those who do not see their loved one frequently, poor decision-making and loss of logic/rational thinking may be one of the first symptoms you notice. The only other thing we noticed was the mild tremors in his hands. We found out recently he had been having nightmares and flailing around in his sleep all this time too, but we never knew that before.

Has there ever been a public service campaign about LBD to help people understand early symptoms? Especially here in Florida a TV commercial or something might be very helpful. If we knew about LBD 3 or 4 years ago we could have prevented a lot of the financial problems my father now faces.

Anyway, I am thankful for finding this forum. Thank you for all your posts.

Emanuel


Thu Mar 24, 2011 7:23 am
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: What was the very FIRST symptom of LBD in ur LO
Your post, Emanuel, rang true for us as well. Dale lost about $40,000. before he actually came to me literally on bended knee and told me to take over all our financial dealings. He was really embarrassed and that was a turning point for us. He had no idea the actual amount. I began paying the bills and the total amazed both of us because it had happened in a matter of months. He just couldn't keep track of anything anymore but he became aware that he could not and that was a blessing.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 24, 2011 8:24 am
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Joined: Wed Mar 09, 2011 12:22 am
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Post Re: What was the very FIRST symptom of LBD in ur LO
The financial problems might very well be among the first signs that something was very, very wrong. We lost our house and had to file bankruptcy. My dh just could not figure out what to do and would basically do anything...at one point he was just writing checks without knowing if the money was there. He too had anger issues and would have no logical answers to just basic questions, like "Why?" He standard response "I don't know." or "I'm doing the best I can."

Problem with first symptoms...hard to tell what is a symptom and what is personality.

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~~Debra, 52, wife to Chris, 64 DX Vascular Dementia 9/10; Alz 10 or 11/2010; Pseudo Dementia 01/11; LBD in 03/11..Was at home until 4/29, 2011, now in a Alz fac./dementia unit.
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Thu Mar 24, 2011 7:18 pm
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Joined: Wed Dec 30, 2009 1:46 pm
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Location: WA
Post Re: What was the very FIRST symptom of LBD in ur LO
Debra, that sounds so familiar! I would ask my husband something like, "Are you hungry?", or "Are you tired?" and he would answer, "I don't know".

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Mar 24, 2011 7:37 pm
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