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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm Posts: 3008 Location: WA
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 Time for thickened liquids
Although he seems to have no trouble swallowing solids, my husband is not doing thin liquids well. Not choking, just not swallowing. He'll just let it drool out of his mouth. I've been giving him water with a catheter-tip syringe because he is unable to effectively use a straw. I asked for a speech therapy evaluation for swallowing [he had one about 1 1/2 years ago and it was fine]. I honestly cannot tell if it is actual dysphagia or whether he just forgets to swallow liquids. But I know that, if they are thickened, it will better stimulate his swallowing reflex. At least I hope so.
_________________ Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Wed Dec 29, 2010 9:30 pm |
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robin
Joined: Fri Aug 11, 2006 1:46 pm Posts: 4811 Location: SF Bay Area (Northern CA)
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 Re: Time for thickened liquids
Not sure thickening liquids will help. Do you think he's scared to swallow liquids and will become un-scared if he knows they are thickened? I'm unclear how the "swallow reflex" will engage if liquids are thickened.
As far as thickeners, I prefer SimplyThick. I suggest doing a taste test.
You may have to try to figure out other ways to introduce hydration -- Jell-O, some fruits, popsicles, etc.
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| Wed Dec 29, 2010 9:50 pm |
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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm Posts: 3008 Location: WA
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 Re: Time for thickened liquids
A speech therapist once explained to me that patients who are dysphagic are far more apt to aspirate thin liquids than thick ones and demonstrated it by showing me some x-ray films of the same patient swallowing both. The thin liquid spread out into the trachea and the thickened 'bolus' went down smoothly. I don't yet know if he has dysphagia so I have asked for a swallowing study.
_________________ Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Wed Dec 29, 2010 10:09 pm |
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dagoetz
Joined: Wed Sep 30, 2009 8:25 am Posts: 227
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 Re: Time for thickened liquids
I need to ask for a swallowing study for my MIL. She is having more frequent coughing episodes after drinking thin liquids. She is also having some trouble chewing food now. Is it really necessary to do a swallowing study? What does it accomplish other than showing swallowing problems? I am already making adjustments as this disease progresses.
_________________ Donna (age 56) caregiver for mother-in-law Margaret (age 88).
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| Thu Dec 30, 2010 10:48 am |
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irene selak
Joined: Sat Jan 03, 2009 2:59 pm Posts: 1941
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 Re: Time for thickened liquids
Pat,
We had really good luck with the thick it for a short while sadly it didn't wok too long, we did go through several aspirations for the remainder of the yr and we did the swallow study and they tried to train him but sadly it was not something that stayed in his memory , so as Robin pointed out we had to figure other means of getting liquids into him!
Good luck with this, it is a tough issue!
_________________ Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns. Irene Selak LBDA Forum Moderator http://www.lbda.org
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| Thu Dec 30, 2010 10:55 am |
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robin
Joined: Fri Aug 11, 2006 1:46 pm Posts: 4811 Location: SF Bay Area (Northern CA)
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 Re: Time for thickened liquids
dagoetz asked: "Is it really necessary to do a swallowing study? What does it accomplish other than showing swallowing problems?"
The key things it accomplishes is it tells you (a) whether thickened liquids are safe at all, (b) what consistency liquids have to be thickened to in order to be safe, and (c) whether silent aspiration is occurring. It can also tell you if a straw is helpful (or not), and if a double-swallow after each drink/chew is helpful (or not).
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| Thu Dec 30, 2010 12:31 pm |
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dagoetz
Joined: Wed Sep 30, 2009 8:25 am Posts: 227
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 Re: Time for thickened liquids
@Robin - Gotcha. Sounds beneficial. She sees doc later in January.
_________________ Donna (age 56) caregiver for mother-in-law Margaret (age 88).
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| Thu Dec 30, 2010 4:02 pm |
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