Now that's funny. And good luck getting him to use it regularly. They really don't remember why they're supposed to.

I'm just very thankful that he can't get up during the night. It's one of the blessings of the catheter! I can't imagine the horror of having him fall and hurt himself like Del. Awful.

It's Nan...checking in with you. Del has had two additional falls since getting outof the ER. One fall yesterday afternoon, but I had the gait belt on hm and was able to control the fall. then in the night (he went to bed at 7 pm) he fell at the foot of his bed, but that was also a soft fall as he had thrown all the bedding on the foor and had fallen on that. He said he was cold so he took all of his clothes off and threw the covers off the bed. I put a diaper back on him and got him in bed with multiple covers on him and he was asleep in 30 seconds. Slept until I woke him as we had to get to a followup appointment for his ER visit.

Have any of you ever heard of anyone doing the opposite of what they want? He was cold, so he took his clothes off and the bedding off the bed. When I say go right, he goes left. And he's not trying to be oppositional. He really is trying to do what I want him to do. If I say look up when I am shaving him, he looks down at the floor. Those neural impulses must really be screwed up for him.

We have an ortho consult tomorrow for his shoulder.

He is sleeping now. He's maybe only up 6 hours a day now. Something is moving really rapidly.

Thanks for all who gave me their condolences on another thread. What would I do without you all?

Smiles, Nan

Same at our house, Leone. Trying to get Del to remember to use the walker is an exercise in futility, too. Lots of things you are now talking about with Dale we have been going through. We don't have a lot of the anxiety and paranoia that you talk about with Dale, but we do have increased hallucinations and delusions. He often speaks in words that have no relationship to the topic. For example, if you ask him if he wants toast or a waffle, he might reply, "79 degrees." Difficult to carry on a conversation with those responses. And, his physical symptoms overshadow all the rest. Sounds as if you are just coing up on all of this. Welcome to my world. Said, sadly for us all. Nan

I am so sorry, Leone. This is the hardest thing I have ever done in my life and I know you feel the same. You can do 150 percent and it isn't enough. You can do 250 percent and it isn't enough. Lewy wins. We all knew this with our minds, but we didn't know it with our hearts.

Nan

Sadly Lewy always wins in the end !