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 Upcoming Surgical Procedure 
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: Upcoming Surgical Procedure
Thanks for all of your input and advise. I will certainly see if a spinal tap will work. She has a hard time waking up on a good day even after 14 hours sleep. She has a high tolerance for pain so we shall see how the Vicodin goes. We don't say much to her because she can't remember from to day and it'll just upset her over and over. Still, I think she senses something is up. Looking for that silver lining.

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Thu Dec 23, 2010 3:49 pm
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: Upcoming Surgical Procedure
Going today for the pre-op. I am armed with Lewy literature for the anesthesiologist, et. al. Spinal block is going to be a no-go because they will need to take a skin graft from her upper arm. Her surgeon listened to us about the problems associated with LBD, so that is reassuring.

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Mon Dec 27, 2010 9:30 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3378
Location: Vermont
Post Re: Upcoming Surgical Procedure
I'm glad the surgeon is listening and hope everything goes well. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Mon Dec 27, 2010 10:48 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Upcoming Surgical Procedure
Skin grafts can be very painful. My father had melanoma and had skin grafts to the resection site on his back. It was the graft donor site that caused him the most discomfort after the surgery.

The problem with Lewy is that the pain is sometimes displaced or even denied but the behavior indicates discomfort. Be prepared. Praying for the best for you and your mother!

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Dec 27, 2010 10:56 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Upcoming Surgical Procedure
Wish your MIL well for this upcoming surgery and that I hope everything heals well, Having had a skin grft many yrs ago the gals posted correctly it is painful and it can feel like the skin is burning too, so I guess you will have to watch for "other" signs if she can't really convey that there is pain!

Good Luck!

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Irene Selak


Mon Dec 27, 2010 1:05 pm
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: Upcoming Surgical Procedure
Went armed with handouts I got from the LBDA website. Of course the hospital staff had never heard of Lewy body dementia. The anesthesiologist is researching options. Contacting neurologist tomorrow. Thanks everyone!
Added: Just found out that the order is now for twilight anesthesia.

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Mon Dec 27, 2010 9:45 pm
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: Upcoming Surgical Procedure
Surgery today went very well. No problems with anesthesia. After four hours of recovery she says she has zero pain. What should I be watching for? She can't remember what was even operated on. Lewy is so wierd.

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Tue Jan 04, 2011 4:45 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Upcoming Surgical Procedure
Glad the surgery went well! From what I've read on the forums about reactions to the anesthesia, you probably would have seen it by now--I think kind of a delerium with hallucinations, paranoia, hostility, etc. In other words, it might be hard to tell, with a Lewy. ;-)

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Jan 04, 2011 5:00 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Upcoming Surgical Procedure
Glad all went well!


Tue Jan 04, 2011 5:02 pm
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