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 Question about hallucinations 
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3436
Location: Vermont
Post Re: Question about hallucinations
Interesting about ice cream, Robin. One day a few weeks ago when my dad refused all breakfast and lunch, he did eventually ask for ice cream. I remembered seeing all sorts of ice cream bars in there that the snack lady at the ALF must have stashed for him. I ran down to his room, got one, and he ate 2 - 3 bites. That was his total "food" for the day, other than apple juice.

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Nov 10, 2010 5:43 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Question about hallucinations
Yep, ice cream seems to be the universal favorite. We have it almost every night [except mine is sugar-free :wink: ].

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Nov 10, 2010 7:40 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Question about hallucinations
Here too.... Dale especially likes vanilla with fresh blueberries...

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Nov 10, 2010 8:24 pm
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Joined: Wed Aug 11, 2010 2:34 am
Posts: 54
Post Re: Question about hallucinations
I had a pretty emotional visit with dad today. When I walked in his room he was standing there with his hands on his cupboard door. After I gave him a hug I asked him what he was doing and he said "I'm holding the wall up". I put my arm around him and said jokingly that the wall wasn't going to fall down. Come on lets go sit in the mood room.
When we sat down he broke down and started crying and telling me he couldn't handle all the things he was seeing and that he had talked to the CG that day about them and he called them something. When I told him they were "delusions" His face lit up and he said "Yes! that's what he called them, delusions, I asked him if they would go away and he couldn't tell me." I said dad I will be honest with you, they are not going to go away but I think today you seem a little more unsettled than other visits and I think you are just having a bad day. His left eye was very lazy today. Something that hasn't been present for some time.
I had planned to make a point of actually finding out what meds he is actually taking and had a chance to sit down with the nurse and the section manager. He was taken off his eflexor (forgive me if my spelling is incorrect and it may be called something different here in Australia) two weeks ago and is currently only on 12.5mg tds of selequol. Which is the smallest of doses. That is basically all he is on so that at least makes it easy to pinpoint any reactions. My question to them is if and when his delusions become more frequent does the doctor see him often enough to adjust his dose? They were very understanding and reassuring about everything I asked and I felt empowered having been on this forum that I understood what they were talking about and discuss at their level.

Dad is seeing crabs crawling everywhere and complains of and itch that he has and everyone in the ALF has this itch according to him. When I asked the nurse this they said that the residents did have an itch at this time and they were aware of it and treating it accordingly. So THAT was not a delusion! LOL

The nurse I spoke to was actually a New Zealander and specialized in mental health and was only on a 12 week contract to work at the ALF and she had actually sat with dad last night and said he is currently in what she would call a "Low state" and he was a lovely man and they had a nice chat. Dads sisters both live in New Zealand so he had a joke to her about the way they talk etc. Which was nice to hear. They also assured me that his nights were settled which was another concern of mine as I imagined him wandering the
ALF having hallucinations most nights but that is not the case.

I only said the other day things were going too good am bracing for a fall. Hope it's is just a bump in the road.


Thu Nov 11, 2010 7:04 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Question about hallucinations
Dear Kelli:

I'm far from an authority on LBD but my husband (75) now has delusions and/or hallucinations every day. As I understand it, there is no medicine that will stop them. He takes 100 mg of Seroquel at night before bed and that dose has controlled the night time behavior. I only rarely give 25 mg to him during the day when his behavior is totally out of control. I'm so sorry that your dad is experiencing delusions and I wish you the best in dealing with them. Ordinarily, they are harmless.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Nov 11, 2010 7:54 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Question about hallucinations
Kelli, as you have discovered, Lewy is a roller-coaster ride. I'm almost afraid any more to talk about my husband's 'good' days because he will inevitably decline to an even worse state the next day [this happened yesterday]. We just have to learn to ride this roller-coaster along with them as best we can. You are doing a wonderful job in overseeing your father's care and comforting him. We're all with you in spirit, be assured of that! :-)

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Nov 11, 2010 10:33 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Question about hallucinations
Kelli,
Many in our local support group deal with bug delusions by filling a spray bottle with water and spraying the bugs to "kill them." It might be worth a try...
Robin


Thu Nov 11, 2010 12:03 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Question about hallucinations
Clever idea! What do you use to get rid of 'imaginary children'? We have those in the bedroom closet.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Nov 11, 2010 12:49 pm
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Joined: Wed Aug 11, 2010 2:34 am
Posts: 54
Post Re: Question about hallucinations
Now you make me giggle Leone> Thanks everyone for the tips on what works for you.


Fri Nov 12, 2010 7:06 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Question about hallucinations
Getting rid of imaginary children: Open the closet door and announce "it's time to leave now. Follow me." Escort them to the front door, open it, and close it. Announce "that was an easy way to get rid of them. We'll do that again."


Fri Nov 12, 2010 10:29 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Question about hallucinations
I noticed the light on in our walk-in closet and the door was closed. I know better than to ask, 'Why.' I'm always amazed at how detailed his hallucinations and delusions are. He can go on and on describing what he sees and the related story. He seems to want me to know about them.

Dale just told me that there is a "mom and a newborn baby" in the closet. "The father never shows up." (And then he thought about it, and he said, "Well, maybe he did once.")

He is still talking about the family in the closet. They sit on the floor. They have a blanket over them. They are very quiet. (He tried to get them to talk several times.) He says, "I don't know the name of their religion." They are well dressed. They stand in the closet for hours. They never take anything.

A second repeatedly told story is about men 'who play in a basketball league.' I just asked him if they are related to the family in the closet. He said, "No, I guess that's a different story."

"One of their favorite things to do is making dolls and toys. I don't know why they do that. They never bring them out into the daylight. They have a school somewhere. I've never found it."

He just said, "We can't review it until we get more information." (That's true.)




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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sat Nov 13, 2010 4:19 pm
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Joined: Wed Mar 23, 2011 11:28 pm
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Post Re: Question about hallucinations
Hello all, Hallucinations and Delusions are old news to us. I do not have enough time to specifically mention all that we have seen and heard from Mom over the past few years but I believe the hardest delusions were sexual in nature and directed toward my wife and her sister and they continue to this day. Once she gets a delusion they always seem to come back and there seems to be some correspondencebetween the delusions and certain hallucinations. One thing that we have learned is that you cannot convince Mom that she is having a hallucination or what she thinks is totally wrong. I believe this has been the hardest part of Mom's Lewy experience so far for the family. There does not seem to be alot of liturature out there on how to deal with this problem other than try to ignore or divert attention. Mom is just now showing more signs of the physical problems which started out with our old buddy the UTI (3 weeks ago) and she seems to be going downhill again. It is interesting the post about Ice Cream, when Mom refuses to eat we can always get her to eat some Ice Cream which sometimes will contain some Meds that she has refused to take. God Bless all. :mrgreen:


Fri Apr 01, 2011 10:30 am
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Joined: Mon Dec 20, 2010 11:35 am
Posts: 18
Location: Israel
Post Re: Question about hallucinations
My mum imagines people who pass through her apartment. They (the hallucinations like the people) come and go. She reports to me about imaginary people but a lot of them are people she has never seen and are I think explanations she has for voices she hears from outside her window or from her neighbors. She has trouble interpreting situations and often makes up elaborate explanatory cover stories for quite straightforward things that she can't work out. I think I once caught her actually speaking to an imaginary person and sometimes she has described to me vivid "real" people she has hallucinated. When I explain to her that the people probably weren't there she normally accepts it.

I have found Exelon to be very effective in curbing the hallucinations though it is not 100%. I just wonder what they would be like by now if she didn't have the Exelon patches.

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Starman*
Father of five and manager of my mum's life


Mon Apr 04, 2011 8:33 am
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Joined: Sun Jul 25, 2010 10:33 am
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Post Re: Question about hallucinations
My Dad has been hallucinating quite regularly since his diagnosis. He has two key hallucinations: 1) he sees "strings" on his hands and constantly tries to shake them off, 2) he thinks there is something wrong with the toilet in the main bathroom, which varies from there being pipe problems (and how he should rip them out) to the toilet overflowing when it isn't.

My mother is getting very frustrated with them both but in particular the latter. There are times where Dad will call her into the bathroom 10 times in a row before he'll use the toilet. It's getting harder and harder for her to keep her cool and she feels bad because she knows it is the disease, not him. Oddly enough he has no issues with either of the other two toilets in the house or one out in public.

Does anyone here deal with repeated (and frustrating) hallucinations and if so, how do you maintain your calm? I'm very concerned about my Mom's mental health. (I'll just add in here that in addition to her caring for my Dad, she's also looking after her 94 year old father who was recently diagnosed with bone cancer, so she has tons on her plate)

Thanks.


Mon Apr 04, 2011 11:39 am
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Question about hallucinations
Frank thinks someone is taking or has taken our car or truck, I'll show him they are in the driveway. He goes outside 8-10 times to check, I keep the doors locked but he still checks. I get frustrated when he wants me to go out and check or to call the police, I know it's very real to him, so I try to show him they ARE THERE and he can no longer dial the phone so I no longer worry about that. They say re-direct, but that doesn't work here.
Your Mom does have a lot on her plate.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Mon Apr 04, 2011 12:31 pm
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