View unanswered posts | View active topics It is currently Thu Oct 23, 2014 9:04 am



Reply to topic  [ 24 posts ]  Go to page Previous  1, 2
 Not walking anymore 
Author Message

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3395
Location: Vermont
Post Re: Not walking anymore
It is very, very sad.

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Aug 27, 2010 1:23 pm
Profile

Joined: Tue Jun 09, 2009 11:11 pm
Posts: 117
Location: Tucson AZ
Post Re: Not walking anymore
Thank you all for your replies. I just printed them up but haven't read them yet. I'll write again soon but I truly thank you for this. I see the site has changed a little and am trying to find what to check when I want to be notified of posts. Anyone know off hand, I'll look around some more.


Fri Aug 27, 2010 1:43 pm
Profile

Joined: Wed Dec 12, 2007 4:53 pm
Posts: 88
Location: Melbourne Beach, FL
Post Re: Not walking anymore
Hello Everyone,

I understand where all you caregivers are at this point because I too had many of the same feelings. I loved my husband and didn't want him to die but I wanted relief from the stress and the physical abuse to my body. The emotions are so complicated. Who can put a guilt trip on us that equals what we inflict on ourselves? We feel like we are in hell because we are. We do not deserve any of it.

Today is the one year anniversary of Charlie's death. I miss him terribly, but I miss who he was before Lewy ravaged our lives. I am grateful for the physical and emotional release for myself as well as for Charlie's relief from his sufferings.

Everyone has to have some release from the huge load that is caregiving and sometimes letting off a little steam in this forum gives just enough relief to be able to get through another 24-hours. A large part of my frustration was feeling like I was locked in a time warp, not able to make any plans, not knowing how long I would have to continue my life of constant caregiving 24/7/365, not knowing if I would die before Charlie did. It is too much for anyone and yet we continue because we can't do otherwise.

May God pour out His blessings on you all and give you strength to continue. Someone aptly quoted David, "O Lord, how long?"

Joy


Fri Aug 27, 2010 5:23 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Not walking anymore
Joy,
I'm thinking of you on this anniversary.
Robin


Fri Aug 27, 2010 5:30 pm
Profile

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3395
Location: Vermont
Post Re: Not walking anymore
Same here, Joy. I hope you find more peace each day. And you're so right about the guilt we inflict on ourselves. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Aug 27, 2010 6:18 pm
Profile

Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: Not walking anymore
My MIL barely walks. She sits in her chair all day and only manages to get to the bathroom which is ten steps away. She also doesn't talk except to say "Ooo, thank you, love" whenever I bring her anything. She calls everyone "love" in case she doesn't get their name right. Today we managed to get her into the car for a ride to get ice cream (we go through the drive through). First time in months. The hardest part of all of this is that you never can let your guard down. It's as if you are always in fight or flight mode because their condition can change so quickly. I can imagine how the stress builds up over time for some of you. Luckily we can afford a private care giver during the day, so we still have our separate lives away from Lewy Land. Keep up the good deeds, everyone. Do not feel guilt over your feelings. Only worry about what you can personally change, otherwise you'll never be at peace. Peace! :)

_________________
Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Fri Aug 27, 2010 6:21 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Not walking anymore
"Love" is probably better than "what's your name"!


Fri Aug 27, 2010 7:24 pm
Profile

Joined: Wed Oct 08, 2008 10:30 pm
Posts: 976
Location: Henderson, Nv.
Post Re: Not walking anymore
My LO shuffled around for a couple of years. The last months of his life he became more unbalanced...fell a couple of times. He didn't quit walking till 2 weeks prior to his death. If you need help with his personal care have his doctor order hospice to aid you. I wish they had ordered it sooner for us as our time together after hospice came in was quality time.

_________________
Dianne C.


Sat Aug 28, 2010 4:24 am
Profile

Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post Re: Not walking anymore
Lori, I hope you have, or can get, help with your dad. As bad as it sounds, if this had to happen I'm glad it was with my "smaller" parent. No way could I have lifted my Dad! I don't know what I would have done.

I also hope you're careful with your back, shoulders, knees and everything else that goes into lifting someone heavy. Your dad needs you healthy.

Everyone, I feel like I've just been in the middle of a big group hug. I'm sorry, Lori, that I diverted the group a bit. But isn't everyone here wonderful! I wouldn't get through this without all of you.

Kate

_________________
Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]


Sat Aug 28, 2010 11:54 pm
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 24 posts ]  Go to page Previous  1, 2

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by Maël Soucaze © 2010 phpBB.fr