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 FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD 
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee,
I will keep you and the family in my thoughts, I know this is so hard to see your FIL like this, Hoping the antibotics will help him!

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Irene Selak


Sat Apr 23, 2011 9:34 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3366
Location: Vermont
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
I'm so sorry for what you are going through. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Apr 23, 2011 10:59 pm
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Joined: Thu Jan 31, 2008 11:47 am
Posts: 88
Location: England
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Thank you for your support guys. He has aspiration pneumonia. What do you think the outcome will be, I cant see him fighting this for much longer. How much longer do you think he might have? The hospital have said that if anything were to happen to him they would not attempt resussitation, which I am pleased about. We are going to try and spend as much time with him as possible so he knows we are there and how much he means to us. Its so hard not being able to do anything.

Lee-Alison xx


Sun Apr 24, 2011 2:16 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee,
I don't think anyone can really predict that, but spending as much time with him as possible is a good idea ! Let him know that it is OK for him to leave if he must, Thinking about you all !

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Irene Selak


Sun Apr 24, 2011 9:32 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3366
Location: Vermont
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Hi Lee - again, I am so sorry. Have you asked the drs. why they have kept him alive through artificial means, like the surgery to put in a feeding tube, and yet they won't resuscitate? It seems like contradictory thinking and care to me. Anyway, I am sure he appreciates his family being at his side and my thoughts are with you. It is so hard seeing our LOs in their final stages. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Apr 24, 2011 10:42 am
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
People can die with aspiration pneumonia at any time. Or some recover with antibiotics. Many in our local support group will treat pneumonia the first time with antibiotics and then will not use antibiotics if pneumonia re-appears soon after the first bout.

I'm glad you are spending lots of time with him.


Sun Apr 24, 2011 11:25 am
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Joined: Thu Jan 31, 2008 11:47 am
Posts: 88
Location: England
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
It is now 5 days that my FIL has been in hospital. His condition remains the same, still on antibiotics to treat pneumonia which is being administered through vein in arm along with fluid, he had the feeding tube put in the other day but was only used yesterday as they had to wait for the x-ray results to make sure that it was in the correct position. Within half a day, he had removed the feeding tube himself. I said to the nurse dont you think he is trying to tell you something. She said she wouldnt attempted to put the tube in again as today he will be looked at by a doctor who will then ring us to discuss what to do next. What shall we do??? Should we ask them to try again with tube or should we request that he has nothing, what a hard decision to make, we dont know what to do for the best, please can you advice what you would do with your LO. Lee xx


Tue Apr 26, 2011 6:10 am
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Joined: Sun Oct 21, 2007 4:18 pm
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Location: Acton, MA
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee, You are in a difficult spot. If it were me, with my husband, I would not want the feeding tube, but we had discuss this years ago. The feeding tube would most likely extend his life, as it was, but what kind of quality would your FIL have. We know they will never get better and if he improves some, you'll be facing a similar decision down the road.
My thoughts and prayers are with you.
Gerry

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Tue Apr 26, 2011 6:39 am
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Joined: Fri Jan 15, 2010 9:33 pm
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Location: Vermont
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee - what would you want done if you were in your FIL's position? What do you think he wants? He's the one who pulled the tube out, right? That seems a very clear message from him as to what he wants.
As stated before, I would not want allow this for one of my LOs who has no hope of any quality of life and is dying of an incurable neurological disesase. What's the point?
Sending lots of support over the airwaves. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Apr 26, 2011 7:49 am
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Joined: Wed Dec 30, 2009 1:46 pm
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Location: WA
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
It's a very difficult situation, not knowing what his wishes would have been. I guess you would have to ask yourself what the quality of his life would be like if prolonged artificially. You are in my prayers.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Apr 26, 2011 8:09 am
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Joined: Thu Jan 31, 2008 11:47 am
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Location: England
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Thank you for your replies. I feel that you guys are the only people I can talk to about this.

Ive just had a phone call from the doctor at the hospital. They have decided to stop all treatments, the antibiotics are not working, my FIL yesterday was able to tell them that he didnt want the feeding tube himself, which was great as they werent listening to us. So this is the end of the line, treatments stopping, nil by mouth unless my fil is able to request. He is being given pain relief as he is in pain because he hasnt been taking his parkinsons medication.

Im now praying for a quick ending, I so want him to be at peace. I really want to thank all of you for your support, I will let you know more in due course. xx


Tue Apr 26, 2011 9:09 am
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Joined: Wed Dec 30, 2009 1:46 pm
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Location: WA
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Thank you for the update! I also pray for a rapid and peaceful exit for your FIL. What a blessing that the decisions were made for you! God bless you and your family.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Apr 26, 2011 9:16 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3366
Location: Vermont
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Being with him and making sure he is given anything to make him comfortable is the best way you can support him now, in my opinion. I hope he is able to rest peacefully and have family and/or friends by his side as much as possible. Take care of yourself too, and keep us posted. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Apr 26, 2011 9:19 am
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Joined: Mon Feb 21, 2011 9:55 pm
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Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee you are all in my thoughts and prayers. God Bless, Ger xxx

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cared for Dad who passed away on January 28th 2013 R.I.P.


Tue Apr 26, 2011 10:49 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee,
I hope your FIL's passing is peaceful.
Robin


Tue Apr 26, 2011 10:58 am
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