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 FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD 
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Joined: Thu Jan 31, 2008 11:47 am
Posts: 88
Location: England
Post FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Hi all, havent been on here for a while, just thought I would give you an update regarding my father-in-law. He had lived at home on his own for a long while with the support of 5 visits a day from carers. He had a period in hospital at the beginning of this year as he had had a fall at home and after a while was admitted to a residential care home for people with dementia. We visit him regularly and take him whatever he needs, new clothes/toiletries/sweets, etc. What a lovely care home it is, so clean and with a really nice relaxed environment, he has good food, and he tells us that he likes it there. My FIL is virtually wheelchair bound as his mobility is very bad and is incontinent. He can recognise us and you can have a conversation with him but he seems to be living in the past, speaking about people who are no longer alive, saying he saw them the other day, and speaking about loads of bizarre things. The staff at the home say he eats and sleeps quite well, can have days of being aggressive. Not sure what the next stage may be.

Im feeling happy about his care, so much better than him struggling at home living on his own, he always said he didnt want to go into a care home but I dont think he realises where he is.

Lee xx


Thu Aug 05, 2010 4:46 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
I'm relieved that your FIL has finally been placed in a care facility and glad to hear that the care provided is good.


Thu Aug 05, 2010 10:01 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee,
I am glad this all finally worked out for your FIL and he is getting good care!

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Irene Selak


Thu Aug 05, 2010 10:24 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
This was the best solution and I hope you never feel guilty about making this decision. My husband is still at home but he could be living in Grand Central Station for all he knows. Coping with him, physically, is getting more difficult and I may have to consider placing him at some point. Finding a good facility is the main issue and I'm so glad you were able to do so. You are in my thoughts and prayers.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Aug 05, 2010 11:45 am
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Joined: Thu Jan 31, 2008 11:47 am
Posts: 88
Location: England
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Hi, it is now a year that my FIL has been in the care home. We visit but he no longer knows who we are, I find it very upsetting and I dont take the children with me anymore. He mobility is very poor and spends a lot of his time in a wheelchair. He still has days when he argues with the staff especially at wash and dress times. We had a phone call today from the care home telling us that my FIL has a chest infection, which he has had for a while and is being treated by the doctor but now he is refusing to eat. He is 76 now, his blood pressure is very low and this is another reason why he doesnt walk. I wish his suffering would end.......


Mon Apr 11, 2011 12:45 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3430
Location: Vermont
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
I hear you. When our LOs lose their mental and physical abilities too it is very hard to see them suffer. I prayed every day my dad would just go to sleep and not wake up, for almost a year. It was heartbreaking for him AND the family to see him in his condition, which just continued to get worse. A few weeks before he died they took him off antibiotics, for which we were grateful. He died peacefully, but it was a torturous life his last year. Sending you a giant hug. It is so hard. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Mon Apr 11, 2011 1:42 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
I am so sorry that your FIL has come to this point in his illness, have to put him on antibotics? Refusing to eat could be his way of saying "No more". Do keep us updated on how he is doing !

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Irene Selak


Mon Apr 11, 2011 10:57 pm
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Joined: Thu Jan 31, 2008 11:47 am
Posts: 88
Location: England
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
yes the doctor put him on antibiotics for the chest infection, but he also put him on some medication for depression, the staff at the home said he has very bad moods and agression at certain times especially if he has to be handled i.e. washing, dressing, shaving. I rang the care home this morning and he is refusing drink, food and will not take medication.

Lee x


Tue Apr 12, 2011 2:15 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3430
Location: Vermont
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
It does sound like he is ready to move on, and if so, the best thing that I think you can do is support what he wants. If he has a lot of quality of life, that's an entirely different story, but your family and the staff where he lives know what his quality of life is better than anyone. Does he have an AD that addresses this sort of situation? Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Apr 12, 2011 7:49 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee,
Sadly when they get to this point they are in charge of what they want and don't want, could be just something while he is going through this infection but it doesn't really sound like it.

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Irene Selak


Tue Apr 12, 2011 9:20 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Lee,
Haven't heard from you in a long time, and am sorry to see this news. I hope your FIL's passing is peaceful.
Best,
Robin


Tue Apr 12, 2011 8:51 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Pat:

Most facilities seem to have waiting lists. You might start your search early and get on some waiting lists. If your turn comes up, you can just pass on it but still be on the list.

I was fortunate in that the memory care facility where my husband now resides was new and I immediately went and signed up before they even got their license.

Not good to have to deal with this in a panic when the LO takes a sudden downward turn.

And, as I opined in another thread, taking a trial run as respite would be extremely helpful in evaluating the facility. I was going to do that, but at that time it was obvious he would be staying permanently.


Wed Apr 13, 2011 12:34 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Gail, I placed Derek in a SNF last December. It was planned as a respite so my injured back could heal but when I learned he was designated a two-person transfer I understood why my back was sore! Anyway, he's been there ever since and it's worked out quite well. I spend four hours a day there, two hours in the morning and two in the evening, so that I can better get to know the different caregivers and monitor his care. I also enjoy just being with him and do a lot of his personal care by choice and help with his meals and therapy. Fortunately, he has a private room, at least until he has to go on Medicaid.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Apr 13, 2011 12:56 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Oh, I see your post was in 2010, duh.


Wed Apr 13, 2011 1:07 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: FIL NOW IN RESIDENTIAL CARE. PARKINSON DISEASE/LBD
Gail, it just proves your point, doesn't it? It pays to check around before you need one because you don't know when and if you will.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Apr 13, 2011 2:26 pm
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