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 LBDA and blood pressure issues 
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: LBDA and blood pressure issues
Well, I bought a new blood pressure machine. Now all I have to do is learn to use it. :roll:

And BTW, I did take Dale to the Christmas breakfast party today... along with his walker ... and he did extremely well. I was so proud of him, I could have cried. Everyone was glad to see him and agreed that we should get together more often.

I am going to take him off Sinemet as the neurologist indicated. I noted that Cheryl did that back in September... Note her September 30, 2010 post. At some point, it apparently works against those with low blood pressure and it is no longer helping any Parkinson's symptoms.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Dec 09, 2010 2:48 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: LBDA and blood pressure issues
Many with OH don't find that the BP machines work for such low BP. They often get error messages.


Thu Dec 09, 2010 4:35 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: LBDA and blood pressure issues
I did not get error messages in our first use of the cuff. In fact, the numbers were much like the doctor saw a few days ago.

Even though I don't have a medical license, I do have a pilot's license ... so I think I have some intelligence. I intend to use it. Discovering what Dale's BP is cannot be rocket science.

If this was a life-threatening situation, I would take him to the hospital. This is mostly satisfying my curiosity. 8)

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Dec 09, 2010 6:23 pm
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 697
Location: LA
Post Re: LBDA and blood pressure issues
Leone, I'm sure Pat knows about this. When my Home Health Nurses checked Mr Bobby's BP they marked it with stick figures, Supine, Sitting, Standing. Cutest little figures and I could tell at a glance what and when they checked. Sure you can do it. It gives you peace of mind.

Dorthea

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"See this lady, she's 85, but she's nice"


Thu Dec 09, 2010 7:24 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: LBDA and blood pressure issues - Dorothea
I love the idea. Thanks, Dorothea. :P

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Dec 09, 2010 7:32 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3176
Location: WA
Post Re: LBDA and blood pressure issues
Yep, that's the way we do it. And when you take it into the doctor's office he will know at a glance, too. Thank you Dorthea--I had been trying to think of a way to post some stick figures. :lol:

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Dec 09, 2010 7:47 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: LBDA and blood pressure issues
Leone wrote:
Irene.... You lost me. Whose dad is being placed and what connection does that have with blood pressure issues? Did the website move your post from another thread?



Leone,
I have no idea how that ended up here it certainly wasn't intended sorry I am removing it !
Thanks for the heads up!

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Irene Selak


Thu Dec 09, 2010 8:23 pm
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: LBDA and blood pressure issues
hubby has not been diagnosed as lewy yet.. still thinking ad, but watching!! .. but we are having more and more hallucinations and delusions..

then last month the hiccuping started.. and has not let up.. 3 or 4 hours a day!!

and this week lots of fluctuating blood pressure.. yesterday..125 over 62 and all of a sudden 87-50!! today in a matter of an hour went from 115 down to 77-46.. then 1/2 hour later back up to 129/62. very scary!! called the 24 hour nurse care at the va and they said cut his bp meds in half and come in on monday.... if it drops any lower than the 77 or if he has dizziness ect.. take him to ER.

every day a new challenge... any ideas or thoughts from those of you that have dealt with this??

thank you~~
cindi

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sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 1-14,released to memory care..


Fri Apr 01, 2011 8:01 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3113
Location: Vermont
Post Re: LBDA and blood pressure issues
This past winter my bp got very low a few days, like 80/50-ish, and my dr. just told me to cut the meds in half that I was taking for atrial fibrillation. That worked and I didn't need to do anything else, but then, I don't have any other illnesses. I was very tired and dizzy so I slept a lot for a few days and it went back to my normal lowish bp. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Apr 01, 2011 9:30 pm
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: LBDA and blood pressure issues
This is the main issue we have with my MIL, next to the cognitive ones, of course. After several years of trial and effort we are still playing around with meds. She went on midodrene and that helped for a while. The, we had the doc take away the meds for her slight heart murmur and that helped for a while. Her doctor then upped the midodrene dosage and that helped for a while. Her cardiologist added a med and that helped for a while. He increased the dosage and that seems to help - for now. Bottom line - this issue will be an issue off and on for the course of the disease. Take steps to fall proof the house and move anything that could cause injury during a fall. Follow behind as he walks and if he passes out, gently lower to the ground (we also had a gait belt to help with this) and lay flat until his blood pressure goes back up. If you cannot get him up call a paramedic to come help you. Of course, if you need to, call an ambulance to take him to the emergency room. I did that so much, that now I try the laying flat procedure first.
Other tips - keep hydrated and try salting food if he can use salt. No one size fits all solution. Best of luck to you.

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Sat Apr 02, 2011 10:01 am
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: LBDA and blood pressure issues
thank you so much for the ideas... will be heading into the doc on monday and see what she says and then the neurologist next month to see her thoughts... hes not supposed to eat salt but yesterday i gave him a bag of chips and lots of water.. seemed to help.. going to get some gatorade today to keep around too..

thanks again...
cindi

_________________
sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 1-14,released to memory care..


Sat Apr 02, 2011 11:10 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: LBDA and blood pressure issues
Cindi,
My thought would be to *not* take your husband to the ER. Orthostatic hypotension can be addressed many ways.
Robin


Wed Apr 13, 2011 2:14 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: LBDA and blood pressure issues
There are lots of suggestions in the article in this post:
viewtopic.php?f=4&t=1944


Wed Apr 13, 2011 2:15 pm
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