View unanswered posts | View active topics It is currently Mon Jul 28, 2014 5:18 pm



Reply to topic  [ 17 posts ]  Go to page 1, 2  Next
 The Left Eye 
Author Message

Joined: Sun Oct 04, 2009 10:18 am
Posts: 276
Location: Washington State
Post The Left Eye
Hi folks. This may be a shot in the dark, but I am wondering whether there may be a relationship between a drooping left eye and LBD. My LO lost the sight in her left eye many years ago from a benign tumor. However, I can tell when she is having a bad day when her left eye droops. I recently read Thomas Graboys' book "Life in the Balance" and I see that his left eye droops. I have noticed this in other people who have dementia at Mom's ALF. Has anyone else noticed this?

Yes, "Life in the Balance" was a wonderful book. I'm considering whether I should read it to my LO. I think it may inspire her, but I'm not sure whether it is a good idea. He has more resources; more money and support than my family. I think that she would want to share her experiences and do more, but the honest truth is that I and my husband make it possible for her to do as much as she does now. And I work full time. Life in the balance, indeed.


Tue Jun 29, 2010 10:09 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post 
This is probably a good question for your mother's MD. I assume that any of us may have strange body quirks -- things that droop or turn red or whatever when we are fatigued, hot, cold, etc.


Wed Jun 30, 2010 12:03 am
Profile

Joined: Wed Feb 10, 2010 1:26 pm
Posts: 56
Location: NC
Post 
Nothing scientic, but I can tell you that each time my husband has a "bad day" his right eye droops. I don't know the connection but I have noticed it for a couple of years, and it's a consistent effect. :-)


Wed Jun 30, 2010 12:30 am
Profile

Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post 
Frank's right eye is drooping but one of his scans showed he has had several mini strokes so I think that was the cause. But who knows, it is interesting and challenging to try to connect the dots. It's just a crap shoot.


Wed Jun 30, 2010 8:36 am
Profile

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3310
Location: Vermont
Post 
My dad's right eye seems slightly droopy lately, but it also appears "dull", like he is blind in that eye. He does have a cataract in one eye (I forget which one) that he as refused to have surgery on, so that might be the cause of his eye just kind of "checking out" because he can't see well.


Wed Jun 30, 2010 8:40 am
Profile

Joined: Thu Jul 03, 2008 11:05 am
Posts: 150
Location: Raleigh, NC
Post 
If a drooping eyelid is related to LBD, it could a very early indicator. When I was a child, my dad warned me that when Mother's left eyelid dropped, it was a sign we were in real trouble. :lol:

Garnet


Wed Jun 30, 2010 5:54 pm
Profile

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post 
My husband's right eye droops but it's been like that for at least 25 years. However, about the time he developed it, he was hospitalized for what seemed to be a brain stem CVA: Couldn't swallow, had intractable hiccups and malignant hypertension. He was in the ICU at the University of WA hospital, had several MRI's and other tests [I still have the journal I kept] but nothing showed up. He ended up with a tracheostomy and feeding tube, which he had for several months before his swallowing returned. It was a real nightmare. But I often wonder if that episode of brain stem encephalopathy [of unknown origin] had any connection to his later LBD.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Jun 30, 2010 7:03 pm
Profile

Joined: Wed Aug 11, 2010 2:34 am
Posts: 54
Post Re: The Left Eye
My dad is 68 is in his third year of being diagnosed with LB and has a drooping left eye. He has declined significantly in the past two months. It would b good to have this confirmed as an indicator for this disease.


Sat Sep 11, 2010 2:14 am
Profile

Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: The Left Eye
It has been a year since this topic was active, but I have noticed lately that my MIL's left eye remains droopy for longer periods. It used to be just when she woke up, but now it droops a lot of the time and her eyes are more and more vacant. Has anybody from the older posts anything new to report about this topic. And should I bring this up to her doctor?

_________________
Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Sun Jun 26, 2011 2:25 pm
Profile

Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: The Left Eye
I think that any change is worth bringing to the doctor's attention. If you can email the doctor that might be a good approach. Does she has an appointment coming up?

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Sun Jun 26, 2011 3:06 pm
Profile

Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: The Left Eye
My daughter is an epileptic from a young child and when she is having an off day with headache her one eye droops also for as long as I can remember so I am not sure how much this could be related to your LO but it is a good question for her Doctor !

_________________
Irene Selak


Sun Jun 26, 2011 4:21 pm
Profile WWW

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: The Left Eye
Donna,
Having a vacant look in the eyes is part of many dementing illnesses. If "droopy" means looking like someone just woke up, with eyelids at half-mast or lower, then this sounds quite normal with many neurodegenerative disorders that include fatigue. Also, in PD and PD-related disorders, blepharospasm could account for some of the eyelid-not-opening-fully symptom.
Robin


Sun Jun 26, 2011 4:55 pm
Profile

Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: The Left Eye
Update on droopy eye: my MIL had a small seizure after I posted. She slept afterwards and the droop improved. I will pay more attention to the droopy eye in the future and alert her caregiver. Will report incident today to her doctor. Thanks everyone.

_________________
Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Mon Jun 27, 2011 9:45 am
Profile

Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: The Left Eye
Donna,
I suspected that ! Thanks for passing the update along here !

_________________
Irene Selak


Mon Jun 27, 2011 10:42 pm
Profile WWW

Joined: Thu Apr 08, 2010 9:17 am
Posts: 7
Post Re: The Left Eye
Recently my lo has kept his right eye shut. When I ask he says he doesn't know. I don't think he is even aware of it. Amvicki


Fri Jul 01, 2011 8:58 pm
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 17 posts ]  Go to page 1, 2  Next

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by Maël Soucaze © 2010 phpBB.fr