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 Our journey's over 
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Joined: Fri Jun 26, 2009 9:39 pm
Posts: 92
Post Our journey's over
Won't make this long. Just wanted to let all know that my darling Johnny died on April 17. Unbelievable how fast this journey was, just under 20 months from the time his symptoms began. We did do the brain donation and so will let you all know what the official diagnosis is. I pray daily for those who are still dealing with this terrible disease.

Judy


Tue May 04, 2010 9:28 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
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Hi Judy - my condolences. I am sure you have many differing emotions - sadness, grief, but also knowing he is released from this terrible disease. I hope you are doing well and have lots of support. Lynn


Tue May 04, 2010 9:33 pm
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Joined: Tue Dec 23, 2008 8:52 am
Posts: 154
Location: Michigan
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Judy,

So sad to read your post. My thoughts and prayers are with you and your family.

Take care.

Karen


Tue May 04, 2010 9:56 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Judy,
My deepest condolences to you and your family on this sad loss. And my deepest appreciation to your husband for making the very generous donation of his brain, and to you for making it happen.
With sympathy,
Robin


Tue May 04, 2010 10:00 pm
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 718
Location: LA
Post end of journey
Judy, I feel sad for your loss. Thank you for giving the effort to keep us informed. Try to care for yourself.

Dorthea


Tue May 04, 2010 10:08 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
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Judy, You and your family are in our thoughts and prayers. Johnny is free from this horrible disease but there will be such a void in your life, take care of yourself and thank you for sharing, please check in often.

Gerry


Tue May 04, 2010 11:27 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
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I'm sorry to hear of your husband's passing. Although he is now free from the ravages of this devastating disease, I know you will continue to suffer his loss. You are in my thoughts and prayers this morning and I thank you for your continued prayers for those of us still in the battle. God bless you and your family!
----------------------------------------
Pat [64] married to Derek [80] for 34 years; husband dx PDD/LBD 2005, probably began 2002-2003; Stage 4. I am his caregiver at home.
----------------------------------------


Wed May 05, 2010 9:30 am
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Joined: Sat Sep 22, 2007 5:53 pm
Posts: 90
Location: Texas
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Judy, I am sorry to hear of the loss of your husband. I wish peace and comfort for you.
Lorraine
p.s. check your private messages.


Wed May 05, 2010 9:37 pm
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Joined: Sat Mar 28, 2009 6:01 pm
Posts: 101
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Judy,

My condolences on your loss, and that of your family. Yes, his life since his illness was diagnosed was not long, but his suffering has thankfully ceased. Now it is time for you to take care of yourself, knowing that you have done everything you needed to do for him. My thoughts are with you.

Doris

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Bay Area, CA


Fri May 07, 2010 12:50 am
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Joined: Tue Jan 05, 2010 5:27 pm
Posts: 146
Location: Fl.
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Judy,
I am so sorry for your loss so quickly. It can change so fast with this horrible disease. Praise God he is at peace now. Have peace your self knowing you were there and did all you could! Take care of your self! Give your self time to grieve than.....LIVE!
Tammy

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I Can Do All Things Through Christ Which Strengthens Me! Phil. 4:13


Sat May 15, 2010 12:59 am
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Joined: Tue Dec 01, 2009 5:04 am
Posts: 14
Location: New Zealand
Post Our journey's over
Judy73
So sad to read your post regarding the loss of your husband.........
You will never regret the hours and days and months spent caring for him - those of us yet to face this take comfort knowing that God doesn't miss one thing that has taken place on the journey. My deep sympathy - take care of yourself now.
Barb


Mon May 17, 2010 5:17 am
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Joined: Sat Jan 27, 2007 8:38 pm
Posts: 712
Location: CA
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Judy --
Your family is in my prayers ...

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Renata (and Jerome-in-Heaven)


Mon May 17, 2010 11:04 am
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Joined: Fri Jun 26, 2009 9:39 pm
Posts: 92
Post 
Dearest all,
Got the pathology report back on Johnny's brain and it did confirm Lewy Body Disease, Transitional Type. So now my question is, what does "transitional type" mean?
I am, of course, still grieving my loss. I miss my sweet man, but what seems to be harder is accepting the pain he had to go through. I just keep crying for what he endured, telling him how sorry I am for that. I have been given a grief book called "Grieving the Loss of Someone You Love," by Raymond R. Mitsch and Lynn Brookside. It is so relevant to my loss and so very helpful; still I can't help being sad.
Again, to all of you who are still on the journey, my thoughts and prayers are with you.
Judy


Fri Jun 18, 2010 4:24 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
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We share your grief, as well, Judy. :cry: God bless you!

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Jun 18, 2010 5:03 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post 
Judy,

Nice to hear from you! Hope you are doing well.

Two other people who used to occasionally post to the Forum got their husbands' neuropath reports back and they showed Lewy Body Disease - Transitional type -- Jean and Joy.

I posted rather extensively to Joy (and less so to Jean) about what this means. See:
http://community.lbda.org/forum/viewtopic.php?t=2122

I think thus far on this Forum we have yet to have anyone post that their LO had Diffuse LBD. I have a few in the local support group who have received such reports.

Robin


Fri Jun 18, 2010 5:44 pm
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