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 Pressure Sore/Hospitalization 
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Pressure Sore/Hospitalization
Thanks so much for all your concern. Since they told me that the tissue around the sore has turned purple (which hasn't happened before) I'm wondering if gangrene has started already.
One of his friends went to see my dad yesterday and he said my dad cried most of the time and kept asking why these terrible things have happened to him. It was very hard on his friend, and I know his CGs also get very upset when my dad gets into his unconsolable sadness. None of us knows what to do about that.
Interesting that I've now had several reports from the nurses there that he is off Aricept and seems to be much calmer and less agitated. Let's see, that took what, 6 months of trying to convince them to take him off that and Namenda? He is still on the Namenda though......

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Nov 13, 2010 1:08 am
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 718
Location: LA
Post Re: Pressure Sore/Hospitalization
Lynn, Ten years ago or more when Mr Bobby was in the early stages of the illness, his neurologist gave him Aricept. He began having bouts of crying. I took him off it and the crying ceased, never to start again. Six years later other symptoms began showing up and in 2008 he was prescribed the Exelon Patch which he tolerated quite well. He was also on the Namenda all the way to the end. I thought our experience might help you decide whether to let your dad have the patch and also keep the Namenda. I'm pleased it was made availavle for Mr Bobby. Its so difficult to know what to do. Keep trying. I'm so sorry about the pressure sore.

Dorthea

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"See this lady, she's 85, but she's nice"


Sat Nov 13, 2010 4:36 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Pressure Sore/Hospitalization
Emotional incontinence is well-treated by many antidepressants or mood stabilizers. Perhaps if your father is already on one of those, the dose can be increased.


Sat Nov 13, 2010 10:36 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Pressure Sore/Hospitalization
My dad is still on Namenda, has been off Aricept for about a month, has been on anti-depressants and anti anxiety meds for over a year (and maybe that does need to be increased again.)
"It is so hard to know what to do" - doesn't that just about sum it all up!?
Thanks ladies. I'll talk with the nurse again tomorrow. His CG today says his pressure sore is no better than it was 3 days ago, despite the new antibiotics. So, I'm trying to figure out how to get back to the East Coast early if things don't show some improvement soon.
Have a good night, Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Nov 13, 2010 11:20 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Pressure Sore/Hospitalization
Lynn, it could be that the main reason for the antibiotics is to keep the ulcer from causing sepsis--blood poisoning. That's what my stepdaughter died from.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sat Nov 13, 2010 11:57 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Pressure Sore/Hospitalization
Let's hope he doesn't die from an infection, but realistically, given his lack of nutrition, age and overall poor health, I am trying to prepare myself for the worst. I thought she'd tell me today that he was a little better, but that wasn't the case unfortunately.

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Nov 14, 2010 12:14 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Pressure Sore/Hospitalization
Just talked with one of my dad's nurses and she says his pressure sore is no better, his health is declining. She says that for the past 4 days she has seen a big decline each day. I will talk with the hospice nurse and wound care nurse tomorrow to see how he is. I hope the airlines are good about squeezing one more person on board - I'm a long way from MD right now and due to fly back a week from tomorrow. I'm thinking a week may be too long.......

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Nov 14, 2010 8:32 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Pressure Sore/Hospitalization
Lynn, in my experience, airlines are very accommodating if you tell them the situation. It's worth a try. God bless!

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sun Nov 14, 2010 8:40 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Pressure Sore/Hospitalization
Thanks Pat. 2 years ago this week we didn't get back in time for our very close friend who was dying of cancer (multiple myeloma). The day after we flew back was the day my husband and I were going to spend the day with him while his wife did some shopping. We got the call at the airport, just before boarding that he'd died, so I am feeling especially anxious about getting back to my dad. I hope I make it back in time. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Nov 14, 2010 8:49 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Pressure Sore/Hospitalization
Lynn,
Is there an in-patient hospice facility nearby where your father could be moved?
Robin


Sun Nov 14, 2010 9:33 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Pressure Sore/Hospitalization
Lynn,
I was getting ready to reply tonight to your most recent post but I see you've now deleted it. As I recall, you said one in-patient hospice facility does not take dementia patients. Your father has lots of diagnoses and not all of them are dementia. Perhaps you could use one of those other diagnoses to get him admitted. If your father is sleeping 22+ hours a day and eating/drinking less than a 1/2 cup a day, I think your next trip there would be a good time to move him.
Robin


Tue Nov 16, 2010 11:59 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Pressure Sore/Hospitalization
Robin, I'm not sure why Lynn would want to move her father at this late stage, if he has hospice at the ALF and they are willing to do end-stage care????

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Nov 17, 2010 1:28 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Pressure Sore/Hospitalization
In-patient hospice facilities have lots to offer.


Wed Nov 17, 2010 1:49 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Pressure Sore/Hospitalization
My dad would have to be moved to another town's hospice home, where he wouldn't know anyone, all of his CGs would be strangers, and I'm thinking that would be extremely disruptive for him in his remaining weeks. He has hospice people coming in every day now, plus his familiar ALF folks.

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Nov 17, 2010 10:29 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: Pressure Sore/Hospitalization
My dad is sleeping all the time now, although they can arouse him to try to feed him. They said they will not try to sit him in his wheelchair and take him to meals anymore - he no longer has the stamina to sit in the wheelchair, even for a few minutes. Pressure still no better, despite antibiotics, with more discolored skin. I suppose if he is sleeping a lot, that is a good thing given his poor state of health. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Nov 17, 2010 8:50 pm
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