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 Hospice is coming in today 
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Joined: Tue Apr 29, 2014 4:27 pm
Posts: 75
Post Hospice is coming in today
I spoke with a Hospice lady last night and they are coming in today. I have been praying and asking the Lord to show me when ? And I feel that he has made it plain that it is time. Larry's bedsores and pain are getting beyond family doctor treatments and Hospice can help him more and give him more comfort and care. He is totally bedfast now and can barely eat baby food. I pray for you all.


Sun Jun 22, 2014 9:58 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3345
Location: Vermont
Post Re: Hospice is coming in today
I sure hope hospice will be as helpful to you as they have been to many, many of our LOs. Good luck Leslie, and keep us informed about what's happening. Big hugs, I know this is a very difficult point in this journey, and I hope he gets more/better pain meds. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sun Jun 22, 2014 10:21 am
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Joined: Sun Jun 08, 2014 11:24 am
Posts: 23
Location: Locust Grove, Ga
Post Re: Hospice is coming in today
My heart goes out to you. Hang on.

Debbie

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64 year old wife of Tom, 72, who was diagnosed LBD a year ago.


Sun Jun 22, 2014 10:53 am
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Joined: Sun Mar 30, 2014 5:11 pm
Posts: 82
Location: IL
Post Re: Hospice is coming in today
Leslie, I know this was not an easy decision for you and your family to make; it never is, until it becomes apparent that hospice services would be the most humane course of action. We're all praying for you and your family. Your husband knows and undoubtedly appreciates having such a devoted wife. You are a dedicated caregiver. Hugs for you! AnneAAA

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AnneA -- Forum Moderator; also daughter, caregiver, and patient advocate for Jean, who died of LBD in January, 2013, at age 91.


Sun Jun 22, 2014 2:45 pm
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Joined: Tue Apr 29, 2014 4:27 pm
Posts: 75
Post Re: Hospice is coming in today
Thank you all. The nurse came in today and her name is Laura, she is a very sweet lady. She got Larry started on morphine today and it has made a big difference already in his pain level. Larry seems to be okay with the changes, I explained that hospice comes in when you have a progressive disease, I hoped that it wouldn't sound so scary or devastating worded that way and it did seem to help. Thank you all for your prayers, I pray for you all.


Mon Jun 23, 2014 12:16 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3345
Location: Vermont
Post Re: Hospice is coming in today
That's good news, Leslie. I was hesitant to talk about hospice with my dad too, but he did surprisingly well when we talked about his receiving hospice services. Having our LOs not in pain at this stage is what's most important. Surround yourself with positive, helpful people at this point so you can keep your spirits up. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Mon Jun 23, 2014 8:51 am
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Joined: Mon Nov 25, 2013 7:33 pm
Posts: 43
Location: Pennsylvania
Post Re: Hospice is coming in today
Leslie, I am glad you are happy with your decision. In my experience, hospice services were wonderful for my Mom. God Bless you and Larry.

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Marian, daughter of mom [82] diagnosed with LBD November 2013 after 7 years of a textbook course of this disease. Passed on January 26, 2014 following a week of home hospice care.


Mon Jun 23, 2014 10:51 am
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Joined: Sun Jun 08, 2014 11:24 am
Posts: 23
Location: Locust Grove, Ga
Post Re: Hospice is coming in today
Just want you to know I too am praying.

Debbie

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64 year old wife of Tom, 72, who was diagnosed LBD a year ago.


Mon Jun 23, 2014 11:43 am
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Joined: Thu May 15, 2014 10:41 pm
Posts: 66
Location: Phoenix, AZ
Post Re: Hospice is coming in today
I am praying for you too, Leslie. You have approached this decision in such a caring, conscious, and spiritual way - I know your husband is aware how blessed he is to have you with him on this journey.

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Molly - Forum moderator. My dad's career as a geologist was interrupted by PD and LBD in 2009. I was a respite caregiver for my dad (lived out of state, but visited many times a year). He passed away peacefully in April 2014.


Mon Jun 23, 2014 9:07 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 251
Post Re: Hospice is coming in today
Thinking of you Leslie. My Mom spent a week in hospice before she passed and everyone there was wonderful. It gave all of us time to say good-bye and not have to worry about the day to day challenges of caregiving - just time to focus on the happy times...

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Fri Jun 27, 2014 10:56 am
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