Our thanks to the growing pool of support group facilitators for your continued commitment to provide a supportive environment to families affected by Lewy body dementia!

If you would like to read how Victoria Ruff started her Metro Boston LBD Caregiver Support Group, click here.

If you would like to become an LBDA Support Group Facilitator, click here.

North American Local Support Groups

Local support groups are listed below first by U.S. states, then by Canadian provinces. All support groups are led by LBDA volunteers, except those with an asterisk (*) following the city name. These other groups truly welcome LBD caregivers, but are not directly affiliated with LBDA.

If you are interested in attending a local LBD support group in a location not currently listed, please check back often.

Quick Links:

United States - AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WI WV WY

Canada – AB BC MB NB NL NS NT NU ON PE QC SK YT

Note: if you are already facilitating a LBD support group and it is not listed below, please send us an e-mail using the form at the bottom of this page.
 

Arizona

East Valley Dementia and Alzheimer’s Support Group

When: First and third Tuesday of each month, from 2:00 p.m. – 4:00 p.m.

Where: Clare Bridge of Tempe, 1610 E. Guadalupe Road, Tempe, AZ 85283

Who: Caregivers and family members who have a loved one with Lewy body dementia, Alzheimer's disease, or any other dementia.

Note: The meetings are drop in. Caregivers are welcome to bring their loved one who has dementia for respite care, free of charge, while the caregiver is attending the support group meeting. 

Contact: Randine Hoefer, 480.777.9334.
 

California

Gold River Lewy Body Support Group

When: Second Thursday of every month, from 10 a.m. – 11:30 a.m.

Where: Eskaton Lodge Gold River, Assisted Living and Memory Care, 11390 Coloma Road, Gold River, CA 95670.

Who: Caregivers and loved ones of those diagnosed with Lewy body dementia.

Contact: Denise Davis, 916.930.9080.
 

High Desert Lewy Body Dementia Support Group*

When: Contact Stephanie Brynjolfson for details.

Where: Contact Stephanie Brynjolfson for details.

Who: For caregivers and family members of those diagnosed with Lewy body dementia.

Contact: Stephanie Brynjolfson, 760.963.1478.
 

Irvine Area Caregiver Support Group 

When: First Wednesday of each month, 9:30 a.m. – 11:30 a.m. (RSVP recommended for parking permits)

Where: University of California Irvine Campus, Gillespie Neuroscience Research Facility, 1st floor conference room

Who: Lewy body dementia and fronto-temporal dementia caregivers.

Contact: Shirley Sirivong, 949.824.8135 or Donna Velarde, 949.757.3759.
 

Northern California/East Bay LBD and other Dementias Support Group

When: Contact Karen Jenkins for details. 

Where: Livermore, CA. Contact Karen Jenkins for details.

Contact: Karen Jenkins, 925.325.0544.
 

Palm Desert Area Alzheimer’s Family Support Group* 

When: Every Thursday, 9 a.m. – 1 p.m.

Where: Eisenhower Medical Center Five Star Club, 42201 Beacon Hill, Suite A, Palm Desert, California, 92211.  

Who: Family members who have a loved one with Alzheimer’s disease, Lewy body dementia, or any other dementia.  

Note: The meetings are drop-in and caregivers are welcome to bring their loved one who has dementia with them to join the adult daycare, free of charge, while the caregivers attend the support group meeting.  

Contact: Stacy Smith, 760.836.0232.
 

Sacramento Pocket Area Lewy Body Dementia Support Group

When: Fourth Wednesday of each month, 2:30 p.m. – 4:30 p.m.  

Where: Primrose Specialized Senior Living, 7707 Rush River Drive, Sacramento, CA 95831.  

Who: Caregivers, and loved ones of those diagnosed with Lewy body dementia. 

Note: Respite care available. 

Contact: Kim Winters BSG., M.Ed., 916.392.3510.
 

San Francisco Lewy Body Dementia Support Group

When: Contact Cynthia Percy for details.

Where: Contact Cynthia Percy for details.

Who: For caregivers and family members of those diagnosed with Lewy body dementia.

Contact: Cynthia Percy, or text/phone 415.672.3418.
 

San Francisco Bay Area - Lewy Body Dementia and Atypical Parkinsonism Caregiver Support Group

When: Approximately every six weeks on a Sunday, 5 p.m. – 7 p.m. (call for date information)  

Where: Restaurant in San Mateo (off Highways 101 and 92)  

Who: Caregivers of those with atypical Parkinsonism disorders (LBD, PSP, MSA, CBGD, etc)  

Contact: Robin Riddle, 650.233.9277.
 

Colorado

Colorado Springs Lewy Body Dementia Support Group*

When: Contact Tammie Fickas for details.

Where: Contact Tammie Fickas for details.

Who: Caregivers and family members of loved ones with LBD.

Contact: Tammie Fickas, 719.510.5162.
 

Northern Colorado Lewy Body Dementia Support Group

When: Second and fourth Saturday of each month, 9:30 a.m. to 11 a.m.

Where: Medical Center of the Rockies, 2500 Rocky Mountain Ave. (basement conference rooms), Loveland, CO 80538. Map and directions.   

Who: For caregivers and family members of those diagnosed with LBD.

Contact: Karen Waldron, 970.219.0898 or 970.282.7183.
 

Delaware

Delaware Valley Lewy Body Dementia Support Group

When: Third Tuesday of each month, 6 p.m. – 7 p.m.

Where: Rockland Place, 1519 Rockland Road, Wilmington, DE 19803. 302.777.3099. 

Who: Caregivers and loved ones of those with a Lewy body dementia diagnosis and who reside in Delaware, Pennsylvania, and New Jersey are welcome to attend.

Contact: Erica Browning, 302.299.7281.
 

Florida

Highlands County Area Weekly Caregiver Support Group

When: Every Thursday, from 1 p.m. – 2 p.m.

Where: Sebring Christian Church, 4514 Hammock Road, Sebring, FL 33872.

Who: Family members of loved ones with progressive dementia.

Contact: Jean Maas, 863.314.9193.

Note: This group was formed in October 2000 by Bill and Lyn Roche, who were caregivers for three family members. Every week, new and seasoned Christian and Jewish caregivers, with loved ones who have a variety of dementias, come together to support each other. Each session begins and ends with a short non-denominational prayer.
 

Jacksonville, FL - Mayo Clinic Memory Disorder Clinic Alzheimer’s and Related Dementia Education Series and Caregiver Support Group

When: Third Tuesday of each month, from 10:45 a.m. – noon.   

Where: Mayo Clinic Memory Disorder Clinic, Cannaday Building – Room 1106, 4500 San Pablo Road, Jacksonville, FL 32224. Free parking is available adjacent to the Cannaday Building.

Who: For family members to improve their understanding of dementia, including symptoms and behavior changes as well as understand the progression of the disease, plan for the future, and provide knowledge to assist in their caregiving role.

Contact: Mayo Clinic Memory Disorder Clinic, 904.953.7103.
 

North Broward Lewy Body Dementia Support Group 

When: Call for meeting day and time

Where: North Broward Memory Disorder Clinic, 201 East Sample Road, Deerfield Beach, FL, 33064

Who: Lewy body dementia caregivers and family members.

Contact: John Cavoto, 954.786.7337.
 

North Pinellas County Lewy Body Dementia Support Group

When: Third Monday of each month, 6 p.m. to 7:30 p.m.

Where: Arden Courts Dementia Assisted Living (behind Manor Care), 2895 Tampa Road, Palm Harbor, FL 34684.

Who: Lewy body dementia caregivers and family members.

Contact: Debbie Langrock, 727.784.6597 or 727.510.9079.
 

Pinellas County/Largo (daytime) Dementia Caregiver Support Group 

When: First and third Friday of each month, 9:30 a.m. – 11 a.m.

Where: Grand Villa Assisted Living, 750 Starkey Road, Largo, FL 33771

Who: Dementia caregivers, including Lewy body dementia caregivers.

Note: The meetings are ongoing - drop in. Free respite care for loved ones while the caregiver is attending the support group meeting. However, please call 727.586.0108 to reserve respite care.

Contact: Karen (Karle) Truman, Ph.D., 727.644.7070.
 

Pinellas County/Largo (evening) Dementia Caregiver Support Group

When: First and third Tuesday of each month, 6 p.m. – 7:30 p.m.

Where: Grand Villa Assisted Living, 750 Starkey Road, Largo, FL 33771

Who: Dementia caregivers, including LBD caregivers.

Note: The meetings are ongoing - drop in. Free respite care for loved ones while the caregiver is attending the support group meeting. However, please call 727.586.0108 to reserve respite care.

Contact: Karen (Karle) Truman, Ph.D., 727.644.7070.
 

Pinellas County/Palm Harbor Dementia Caregiver Support Group

When: First and third Tuesday of each month, 9:30 a.m. – 11 a.m.

Where: St. Mark Village Assisted Living, 880 Highlands Blvd., Palm Harbor, FL 34684, 727.785.2580.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Note: The meetings are ongoing - drop in.

Contact: Karen (Karle) Truman, Ph.D., 727.644.7070.
 

Pinellas County/St. Petersburg Dementia Caregiver Support Group

When: First and third Wednesday of each month, 6 p.m. – 8:15 p.m.

Where: Bon Secours Place Assisted Living, 10401 Roosevelt Blvd., St. Petersburg, FL 33716

Who: Dementia caregivers, including LBD caregivers.

Note: The meetings are ongoing - drop in. Free respite care for loved ones while the caregiver is attending the support group meeting. However, please call 727.563.9733 to reserve respite care.

Contact: Karen (Karle) Truman, Ph.D. (karenkarle@knology.net ), 727.644.7070.
 

Georgia

Three groups/classes sponsored by the Emory Alzheimer’s Disease Research Center:
 

Atlanta Early Memory Loss Group/Class*  

When: Fridays for 8 weeks, from 10:30 a.m. - noon. Held twice a year in September-October and again in February-March.

Where: Emory Alzheimer’s Disease Research Center, 1841 Clifton Rd., Atlanta, GA 30329.

Who: Open to people with mild cognitive impairment, early Alzheimer’s disease, early LBD and early frontotemporal dementia. Couples are invited to participate where one person has been diagnosed with mild memory and cognitive changes. The group is divided so that the member of the couple who is experiencing memory or cognitive changes meets in one group and their spouse/care partner meets in another group. Single individuals experiencing early memory loss are also invited to participate in this group. They may come alone but are encouraged to bring a friend and/or family member to participate in the care partners group. Topics include: common changes in people faced with cognitive changes, role changes, memory aides, planning for the future and stress reduction.

Note: Participation requires an interview prior to registration.

Contact: Susan Peterson-Hazan, MSW, LCSW 404.728.6273.
 

Caregiver Challenges Class: Everything A Caregiver Needs to Know about the Middle Stage of Dementia*  

When: Fridays for 6 weeks, from 10:30 a.m. – noon. Held twice a year in November-December and again in April-May.

Where: Emory Alzheimer’s Disease Research Center, 1841 Clifton Rd., Atlanta, GA 30329.

Who: Class is designed to prepare caregivers for the middle stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. These progressive neurodegenerative diseases require families to plan for the future. Proactive planning can help ensure a high quality of life for the person with the illness as well as their family. Topics include: middle stage disease symptoms, behavior changes and strategies to cope with the changes, treatment options, legal planning issues, and resources to meet evolving needs.

Note: Participation requires registration.

Contact: Susan Peterson-Hazan, MSW, LCSW , 404.728.6273.
 

Late Stage Dementia Class: Things A Caregiver Needs to Know about Late Stage Alzheimer’s Disease, LBD and Frontotemporal Dementia* 

When: Fridays for 4 weeks, from 10:30 a.m. – noon. Held twice a year in January and again in May-June.

Where: Emory Alzheimer’s Disease Research Center, 1841 Clifton Rd., Atlanta, GA 30329.

Who: Class is designed to prepare caregivers for the late and terminal stage of Alzheimer’s disease, LBD, frontotemporal dementia and other neurodegenerative diseases. Topics to be covered include late stage physical symptoms of neurodegenerative diseases, ethical dilemma’s that may occur and services available during the late stage, such as Hospice.

Note: Participation requires registration.

Contact: Susan Peterson-Hazan, MSW, LCSW , 404.728.6273. 
 

Illinois

Northern Chicago/Highland Park Area LBD Support Group  

When: First Friday of each month, from noon – 2:30 p.m. Members are free to leave early if they if they can’t stay until 2:30 pm.

Where: Symphony's Café, 1945 Central Street, Evanston, IL 60201, 847.475.1200.

Who: For family members who have a loved one with LBD.

Contact: Hynda Gamze , 847.432.6216. Be sure to provide your e-mail address and phone number. 
 

Indiana

Kentuckiana Lewy Body and Related Dementias Support
Group

When: Contact Angela Youngman for details.

Where: Contact Angela Youngman for details.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Contact: Angela Youngman, 502.387.3898.
 

Brown County Caregiver Support Group  

When: First Tuesday of each month, 1:30 p.m. – 3 p.m.

Where: Brown County Public Library – Lower Level meeting room, 205 Locust Lane, Nashville, IN 47448.

Who: Caregivers, family members, friends, support persons and health care professionals caring for persons with Lewy body dementia, Alzheimer’s disease, and other types of degenerative dementias.

Contact: Donna Partridge, 812.988.9390. 
 

Kansas

Topeka-Northeast Kansas Dementia Support Group  

When & where: The next meeting is being scheduled; contact June Christensen for details.

Contact: June Christensen, 785.273.7290.
 

Kentucky

Kentuckiana Lewy Body and Related Dementias Support
Group

When: Contact Angela Youngman for details.

Where: Contact Angela Youngman for details.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Contact: Angela Youngman, 502.387.3898.
 

KYOVA (Kentucky, Ohio and West Virginia) Lewy Body and
Other Dementias Support Group

When: First Thursday of each month, 6:30 p.m. – 8:30 p.m., beginning Oct. 1, 2009.

Where: Sarah Care, 2 Courtyard Lane, Barboursville, WV 25504.

Directions: Either 2.1 miles from I-64 East (exit 15) on Route 60, or 0.9 miles from I-64 West (exit 18) on Route 60 - behind Tascali's restaurant on Route 60.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Contact: Kelly Shivel, 304.736.3005.
 

Louisiana

Northwest Louisiana Lewy Body Dementia Caregiver’s Support Group

When: Fourth Tuesday of every month, 2 p.m. – 3:30 p.m.

Where: Hospice of Shreveport/Bossier, 3829 Gilbert Drive, Shreveport, LA 71104.

Who: Caregivers of people with LBD.

Contact: Grace Holcombe, 800.824.4672 or 318.865.7177.
 

Maine

Portland Area Atypical-Parkinson’s Support Group*  

When: Meets quarterly. Contact Janet Edmunson for dates and times.

Where: Parkinson's Information & Referral Center At MaineHealth Learning Resource Center, 5 Buckman Road, Suite 1A, Falmouth, ME 04105.

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.

Contact: Janet Edmunson, 207.799.4963 or Barby Johnson, 207.633.0881. 
 

Maryland

Baltimore County LBD Caregiver Support Group  

When: Contact Kathleen Hadaway for details.

Where: Morningside House of Satyr Hill, 8800 Old Harford Road, Parkville, MD 21234.

Who: Caregivers and family members of those diagnosed with Lewy body dementia.

Contact: Kathleen Hadaway, 443.802.0734. 
 

Massachusetts

Central Massachusetts LBD Caregivers Support Group

When: First Wednesday of each month, 6:30 p.m. – 8:00 p.m.

Where: Southgate at Shrewsbury, 30 Julio Drive, Shrewsbury, MA 01545. (Click here for directions.)

Who: Caregivers and families of people diagnosed with Lewy body dementia.

Contact: Cathy Flanagan, 508.735.2059
 

Metro Boston LBD Caregiver Support Group

When: Third Thursday of each month, 6:30 p.m. – 8 p.m. (Please call to confirm the date and time.)  

Where: Grande Room at Sherrill House, 135 South Huntington Avenue, Jamaica Plain, MA 02130. (Click here for directions.)  

Contact: Victoria Ruff, 617.710.0136 

Note: Other Massachusetts support groups may soon form, in areas such as the South Shore, and the western part of the state, should there be additional interest. For now be part of the Massachusetts online e-mail group by e-mailing your contact information to Victoria Ruff so she can advise you when a group forms in your area. E-mailing Victoria will also allow you to connect online now with others in your immediate area. 
 

North Shore Atypical Parkinson’s Support Group*

When: Meets quarterly, 1:00 p.m. – 3:00 p.m. Contact Ann Aversa for dates.

Where: Lahey Clinic Medical Center, Alumni Conference Room, 41 Mall Road, Burlington, MA 01705.  (Click here for directions.)

Who: People and families dealing with LBD, PSP, CBD, MSA and other similar neurological disease.  

Contact: Ann Aversa, 617.872.8356.
 

Michigan

Ann Arbor/Detroit Area Lewy Body Dementia Support Group

When: Second Wednesday of each month, from 6:30 p.m. – 8:00 p.m.

Where: Waltonwood at Cherry Hill (an assisted living and dementia care facility), 42600 Cherry Hill Road, Canton, MI 48188. Note: the entrance to the Dementia Care Facility is on Lilley Road. Please check in at the front desk located in the lobby.

Directions:

From Downriver Area: Take I-275 North to Michigan Avenue/US 12 Exit 22. Turn right (west) onto Michigan Avenue. Turn right (north) onto Lilley Road. The entrance is on the left just past Cherry Hill Road.

From Ann Arbor Area: Take M-14 East to Ford Road/M-153 Exit 42 Turn right (south) onto Lilley Road. The entrance is on the right just before Cherry Hill Road.

From Detroit Area: Take I-96 West to I-275 South to Ford Road/M-153 Exit 25. Turn right (west) onto Ford Road.Turn left (south) onto Lilley Road. The entrance is on the right just before Cherry Hill Road.

Who: Caregivers, family members and friends of those diagnosed with Lewy body dementia.

Contact: Barb Clark Walters 734.536.4226

Note: If you are interested in a support group in a different Michigan location, contact Barb Clark Walters. She maintains a list of requests identifying where geographic needs exist and will advise you when a group forms in your area.
 

Minnesota

Minnesota Caregiver Support Group

When: Third Monday of each month, usually at 6:30 p.m.

Where: Lakeview Commons of Maplewood, 1200 Lakewood Dr. N., Maplewood, MN 55119. (Please call to confirm the time and place.)

Who: Group is for families facing a diagnosis of LBD and healthcare professionals working with persons with LBD who want information and support.

Contact: Joyce Aakre at Lakeview Commons 651.770.1111 ext. 150 or Elaine Carlson for specifics of the upcoming meeting and to be placed on the group's mailing list.
 

Southwest Metro Minneapolis Caregiver Support Group

When: Second Monday of each month, 12:00 p.m. – 2:00 p.m.

Where: Gianna Homes, 4605 Fairhills Road East, Minnetonka, MN 55345. Please park in the lower parking lot behind the residence. (Call the contact number below to confirm the time and place.) Click here for directions or contact Anne Marie Hansen for directions.

Who: For families facing a diagnosis of LBD and healthcare professionals working with persons with LBD who want information and support.

Contact: Anne Marie Hansen, 952.988.0953 for meeting specifics and to be placed on the group's mailing list.
 

St. Paul Lewy Body Dementia Caregiver Support Group*

When: Third Tuesday of each month, 5:30 p.m. - 7:30 p.m.

Where: Bethesda Hospital, B-Level - Outpatient Services, 559 Capitol Blvd., St. Paul, MN 55103.

Who: For caregivers of a loved one who has a diagnosis of Lewy body dementia. Each group meeting is part education and part share and support.

Contact: Tanya Rand, MSW, LICSW, 651.232.2202 for specifics about the next meeting and to be placed on the group's mailing list.
 

Twin Cities Metro Area Caregiver Support Group*

When: Second Thursday of each month, from 1 p.m. – 3 p.m.

Where: Struthers Parkinson's Center, 6701 Country Club Drive, Golden Valley, MN 55427

Who: Caregivers of those living with movement disorders, including Lewy body dementia, Parkinson's disease.

Note: Respite care is available during the support group meeting. Please call to make a reservation.

Contact: Joan Hlas, 952.993.6650.
 

Twin Cities Metro Area Atypical Parkinson's Disease Support Group*

When: Second Wednesday of each month, from 1:00 p.m. – 3:00 p.m.

Where: Struthers Parkinson's Center, 6701 Country Club Drive, Golden Valley, MN 55427

Who: Anyone diagnosed or caring for someone diagnosed with a Parkinson's disease spectrum disorder, including Lewy body dementia, progressive supranuclear palsy, and multiple systems atrophy.

Contact: Joan Hlas, 952.993.6650.
 

Twin Cities Southeast Metro Caregiver Support Group

When: Second Thursday of each month, from 6:30 p.m. – 8:30 p.m.

Where: Peaceful Mind Homes, 3808 Blackhawk Ridge Place, Eagan MN 55122. Call the contact number below to confirm the time and place. Contact kam@peacefulmindhomes.com for directions.

Who: Caregivers and family members who have a loved one with Lewy body dementia, Alzheimer's disease, or any other dementia.

Note: The meetings are drop in. Caregivers are welcome to bring their loved one who has dementia for respite care, free of charge, while the caregiver is attending the support group meeting. Please call to make a reservation.

Contact: Kam Aggarwal, 651.538.4499.
 

Missouri

St. Louis Early Onset Dementia Support Group *

When and where: Contact Charlie Schneider for details.

Who: Anyone with early onset dementia, including Lewy body dementia, Alzheimer’s disease, and other dementias.

Contact: Charlie Schneider, 314.422.0238.
 

New Hampshire

Monadnock Parkinson’s Support Group

When: First Tuesday of every month, from 2:00 p.m. – 4:00 pm.

Where: Saint James Episcopal Church’s Undercroft on the lower level, 44 West Street (for the Undercroft, use the Lamson Street entrance), Keene, NH 03431.   

Who: Anyone who has Parkinson-like symptoms or Parkinson’s disease and their caregivers.  

Contact: Joe Nicholas, 603.352.1727.
 

New York

Long Island Area Support Group

When: Fourth Monday, 7:00 p.m – 8:30 p.m.

Where: Nassau County; call for location.

Who: Lewy body dementia caregivers.

Contact: Norma Loeb, 212.556.1278.
 

New York Metro Area Support Group  

When: Second Tuesday, 12:30 p.m. – 2:00 p.m.

Where: Manhattan; call for location.  

Who: LBD caregivers.  

Contact: Norma Loeb, 212.556.1278.
 

North Carolina

Parkinson and Lewy Body Dementia Support Group of Wilmington

When: Fourth Tuesday of each month, 1:30 p.m. – 3:30 p.m.

Where: Wilmington Senior Center, 2222 South College Road, Wilmington, NC 28483.

Contact: Dick Freund , 910.686.2583.
 

Ohio

KYOVA (Kentucky, Ohio and West Virginia) Lewy Body and
Other Dementias Support Group

When: First Thursday of each month, 6:30 p.m. – 8:30 p.m., beginning Oct. 1, 2009.

Where: Sarah Care, 2 Courtyard Lane, Barboursville, WV 25504.

Directions: Either 2.1 miles from I-64 East (exit 15) on Route 60, or 0.9 miles from I-64 West (exit 18) on Route 60 - behind Tascali's restaurant on Route 60.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Contact: Kelly Shivel, 304.736.3005.
 

Northwest Ohio Dementia-Related Diseases (LBD, PDD, Alzheimer's Disease) Support Group

When: Third Thursday of every month, 7:00 p.m. – 8:30 p.m.

Where: Hilty Memorial Home, Conference Room, 304 Hilty Drive, Pandora, OH 45877.

Who: Caregivers, family, and friends of those with dementia-related diseases.

Contact: Ruth Ann Grismore, 419.634.2282.
 

South Carolina

East Cooper Dementia Caregiver Education and Support Group*

When: First and third Wednesday of each month, 9:30 a.m. – 10:30 a.m.

Where: All Saints Lutheran Church, 2107 Highway 17 North, Mt. Pleasant, SC 29464.

Who: Caregivers, family members, friends, and health care professionals in the greater Charleston/tri-county area caring for persons with progressive forms of dementia from diseases such as Lewy body dementia, Alzheimer's disease, Pick’s disease, vascular dementia, frontotemperal dementia, or Parkinson’s disease.

Note: Respite care is available during the support group meeting. Please call ahead if you plan to utilize respite services.

Contact: Ginger Deignan, 843.810.5576.
 

Golden Corner Lewy Body Dementia Support Group.

When: Last Monday of each month, 4 p.m. – 5 p.m.

Where: Benton Village Retirement Community, 515 Benton St., Seneca, SC 29672.

Who: Caregivers and health care professionals.

Contact: Debbie Malone , 864.888.4114.
 

Johns Island Dementia Caregiver Support Group*

When: Third Thursday of each month, 1 a.m. – 2 p.m.

Where: Episcopal Church of Our Saviour, 4416 Betsy Kerrison Parkway, Johns Island, SC 29455.

Who: Caregivers, family members, friends, and health care professionals, in the Greater Charleston/Tri-county area caring for persons with progressive forms of dementia from diseases such as Lewy body dementia, Alzheimer's disease, Pick’s disease, vascular dementia, frontotemperal dementia, or Parkinson’s disease.

Note: Respite care is available during the support group meeting. Please call ahead if you plan to utilize respite services.

Contact: Laura Stefanelli, 843.478.8756.
 

Midlands Area (daytime) Lewy Body Dementia Support Group

When: Second Monday of each month, noon – 1 p.m.

Where: The Haven in the Summit, 3 Summit Terr., Columbia, SC 29229 (located near the Village at Sandhill shopping center).

Who: For Lewy body dementia caregivers and family members who have a loved one with LBD.

Contact: Dianne Hillyer, 803.917.3470.
 

Midlands Area (evening) Lewy Body Dementia Support Group

When: Second Monday of each month, 6:30 p.m. – 7:30 p.m.

Where: Lifespan Consulting, 7021 St. Andrews Road, Columbia, SC 29212 (located near Lexington Medical Center Urgent Care).

Who: For Lewy body dementia caregivers and family members who have a loved one with LBD.

Contact: Dianne Hillyer, 803.917.3470.
 

Upstate Lewy Body Dementia Support Group

When: First Tuesday of each month, 5:00 p.m. – 6:00 p.m.

Where: The Haven in the Village at Chanticleer, 355 Berkmans Lane, Greenville, SC 29605.

Who: Caregivers, family members, friends, support persons and health care professionals, in Greenville, Greer, Easley, and Spartanburg, caring for persons with Lewy body dementia, Alzheimer's disease, and other types of degenerative dementias.

Contact: Gail Stokes, 864.350.7160.
 

Texas

Houston Area Lewy Body Dementia Caregivers Support Group*

When: Contact Michelle Sonnier for details.

Where: Contact Michelle Sonnier for details.

Contact: Michelle Sonnier, 713.314.1393.
 

Houston Area Support Group*

When: Third Saturday of each month (except for July (no meeting) and December, when the meeting is on the second Saturday.) 1:00 p.m. – 3:00 p.m.

Where: Learning Center B of Professional Building II on the campus of the Memorial Hermann Southwest Hospital located at 7737 Beechnut. (Located at the Beechnut/Gessner Exit from Highway 59.)

Who: For caregivers and persons with progressive supranuclear palsy (PSP), Lewy body dementia, corticobasal ganglionic degeneration, and multiple system atrophy.

Contact: Karen M. Kennemer , 281.358.2282.
 

North Dallas/Richardson Lewy Body Dementia Caregivers Support Group*

When: First Wednesday of each month, 5:00 p.m. – 6:00 p.m. (Note: first meeting is Wednesday Dec 2, 2009. Contact Pam Kovacs for more information.)

Where: Friends Place Adult Day Services, 1960 Nantucket Drive, Richardson, TX 75080.

Who: For caregivers and family members of those diagnosed with LBD.

Contact: Pam Kovacs, 972.437.2940.
 

Virginia

Central Virginia Lewy Body and Other Dementias Support
Group

When: Fourth Thursday of every month, 3 p.m. – 4 p.m.

Where: Lynchburg Family Medicine Conference Room at 2323 Memorial Ave., Suite 10, Lynchburg, VA 24501.

Who: Caregivers and family members of those diagnosed with dementia-related diseases, such as LBD, PDD, Alzheimer's disease.

Contact: Jean Driscoll 550.580.9000.
 

West Virginia

KYOVA (Kentucky, Ohio and West Virginia) Lewy Body and
Other Dementias Support Group

When: First Thursday of each month, 6:30 p.m. – 8:30 p.m., beginning Oct. 1, 2009.

Where: Sarah Care, 2 Courtyard Lane, Barboursville, WV 25504.

Directions: Either 2.1 miles from I-64 East (exit 15) on Route 60, or 0.9 miles from I-64 West (exit 18) on Route 60 - behind Tascali's restaurant on Route 60.

Who: Dementia caregivers, including Lewy body dementia caregivers.

Contact: Kelly Shivel, 304.736.3005.
 

Wisconsin

Southern Wisconsin/Beloit (daytime) Dementia Support Group*

When: Second and fourth Tuesday of each month, 1:00 p.m. – 2:30 p.m.

Where: Beloit Memorial Hospital, 1969 West Hart Road, Beloit, WI 53511

Who: Caregivers of individuals with Lewy body dementia, Alzheimer’s disease, and other related illnesses.  

Contact: Larisa Chmielewski, 608.314.8500.
 

Southern Wisconsin/Beloit (evening) Dementia Support Group*

When: Third Tuesday of each month, 7:00 p.m. – 8:30 p.m.

Where: First Methodist Church, 511 Public Avenue, Beloit, WI 53511

Who: Caregivers of individuals with Lewy body dementia, Alzheimer’s disease, and other related illnesses.

Contact: Nancy Toubl, 608.362.8866 or Julie Ojeda, 608.365.5529.
 

Southern Wisconsin/Janesville Dementia Support Group*

When: Second Thursday of each month, 10:00 a.m. – 11:30 a.m.

Where: American Red Cross, 211 North Parker Drive, Janesville, WI 53545.

Who: Caregivers of individuals with Lewy body dementia, Alzheimer’s disease, and other related illnesses.

Contact: Julie Seeman or Paulette Steinke, 608.758.8455.
 

Southern Wisconsin/Edgerton Dementia Support Group*

When: Third Wednesday of each month, 1:00 p.m. – 2:30 p.m.

Where: Edgerton Hospital (in the classroom near the cafeteria on the outpatient floor), 313 Stoughton Road, Edgerton, WI 53534.

Who: Caregivers of individuals with Lewy body dementia, Alzheimer’s disease, and other related illnesses.

Contact: Tammy Pence, 608.314.8500.
 

Toronto, Ontario, Canada

Alzheimer Society of Toronto Lewy Body Family Support Group*

When: Second Wednesday of each month 4:30 p.m. – 6:00 p.m.

Where: Alzheimer Society of Toronto, 20 Eglinton Avenue West, 16th Floor, Toronto, Ontario M4R 1K8

Who: Family members of those diagnosed with Lewy body dementia.

Contact: Desiree Jones, 416.322.6560, ext. 6322. 

 

* All groups led by LBDA volunteer with the exception of those marked with an asterisk.