Below is a sample of the growing body of books on the topic of Lewy body dementia for family caregivers.
Relentless Goodbye: Grief and Love in the Shadow of Dementia by Ginnie Horst Burkholder, 2012
Treasures in the Darkness by Pat Snyder, 2012
Dignifying Dementia: A Caregiver's Struggle by Elizabeth Tierney, 2011
Life in the Balance: A Physician's Memoir of Life, Love and Loss with Parkinson's Disease and Dementia by Thomas Graboys, M.D. and Peter Zheutlin, 2008
LBD and Caregiving Resources
Living with Dementia, A practical guide for families and personal carers by Esther Chang and Amanda Johnson, 2013.
Living with Lewy Body Dementia: One Caregiver's Personal, In-Depth Experience by Judy Towne Jennings, PT, MA, 2012.
A Caregiver's Guide to Lewy Body Dementia by Helen Buell Whitworth, MS, BSN, James A. Whitworth, 2010.
Lewy Body Dementia - What Everyone Needs To Know-DVDs Featuring occupational therapist and dementia educator Teepa Snow, MS, OTR/L, FAOTA. 2013. Individuals will learn about some of LBD’s more challenging symptoms and caregiving scenarios, how to adapt caregiving skills to the needs of a person with LBD and how to utilize visual and verbal cues to increase understanding and cooperation. NOTE: Due to the overt manner in which certain caregiving challenges are presented in this DVD, it may be upsetting to individuals in the early stages of LBD and their family caregivers. LBDA suggests this resource is most appropriate for professionals or family caregivers of individuals in mid to late stages of LBD.