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Books on LBD and Dementia Caregiving

Below is a sample of the growing body of books on the topic of Lewy body dementia for family caregivers.


Window Of Opportunity: Living with the reality of Parkinson's and the threat of dementia by Kirk Hall, 2014

Relentless Goodbye: Grief and Love in the Shadow of Dementia by Ginnie Horst Burkholder, 2012

Dignifying Dementia: A Caregiver's Struggle by Elizabeth Tierney, 2011

Gone Mad: Dementia, Family Treachery, and Legal Insanity by Carol Pendergrass, 2010.

Though He Slay Me: Our Experience with Lewy Body Dementia by Anne Hartman, 2010.

Treasures in the Darkness by Pat Snyder, 2012

Life in the Balance: A Physician's Memoir of Life, Love and Loss with Parkinson's Disease and Dementia by Thomas Graboys, M.D. and Peter Zheutlin, 2008

LBD and Caregiving Resources

Dementia with Lewy Bodies and Parkinson's Disease Dementia: Patient, Family, and Clinician Working Together for Better Outcomes by Dr. J. Eric Ahlsog, 2013

Living with Dementia, A practical guide for families and personal carers by Esther Chang and Amanda Johnson, 2013.

Living with Lewy Body Dementia: One Caregiver's Personal, In-Depth Experience by Judy Towne Jennings, PT, MA, 2012.

A Caregiver's Guide to Lewy Body Dementia by Helen Buell Whitworth, MS, BSN, James A. Whitworth, 2010.

Living With Lewy's; Empowering Today's Dementia Caregiver by Amy and Gerald Throop, 2010.

The Dementia Caregivers Little Book of Hope by Karen (Karle) Truman, Ph.D., 2009.

Finding Meaning with Charles: Caregiving with Love Through a Degenerative Diseaseby Janet Edmunson, 2006.

The 36-Hour Day : A Family Guide to Caring for Persons With Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life by Nancy L. Mace, 2006.


Lewy Body Dementia - What Everyone Needs To Know-DVDs Featuring occupational therapist and dementia educator Teepa Snow, MS, OTR/L, FAOTA. 2013. Individuals will learn about some of LBD’s more challenging symptoms and caregiving scenarios, how to adapt caregiving skills to the needs of a person with LBD and how to utilize visual and verbal cues to increase understanding and cooperation. NOTE: Due to the overt manner in which certain caregiving challenges are presented in this DVD, it may be upsetting to individuals in the early stages of LBD and their family caregivers. LBDA suggests this resource is most appropriate for professionals or family caregivers of individuals in mid to late stages of LBD.