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LBDA Milestones

 2008

  • November 2008 – Published An Introduction to Lewy Body Dementia booklet with detachable medical alert card, available in print and on LBDA’s website
  • November 2008 – Distributed over 100,000 An Introduction to Lewy Body Dementia booklets to nearly 900 Area Agencies on Aging across the US
  • October 2008 – LBDA Local Support Group Network increased to 40 groups across the US and Canada, more than doubling our number of support groups in one year
  • October 2008 – Caregiver survey results were presented for the first time at the Congress on Non-motor Symptoms in Parkinson's Disease in Dresden Germany
  • June 2008 – Launch of LBDAtv via YouTube.com in order to make multimedia educational presentations on LBD available online 24/7.
  • June 2008 – Launch of redesigned www.lbda.org website
  • May 2008 – Released Current Issues in LBD Diagnosis, Treatment and Research, a publication authored by the LBDA Scientific Advisory Council. The publication was pre-ordered by more than 500 people
  • April 2008 – Promoted Current Issues in LBD Diagnosis, Treatment and Research through LBDA’s website and direct mail to thousands of doctors attending the American Academy of Neurology conference
  • March 2008 – Concluded LBD Caregiver Assessment survey with nearly 1,000 participants

2007

  • December 2007 – Received $50K unrestricted educational grant from Novartis
  • September 2007 – Launched a major survey to assess LBD Caregiver Burden
  • June 2007 – Collaborated with Emory University on a presentation to the Georgia Association of Social Workers
  • May 2007 – Held roundtable discussion with LBD experts on current issues in LBD diagnosis, treatment and research
  • April 2007 –Invited for the first time to appear on a PBS television station’s talk show on dementia caregiving
  • March 2007 – Co-sponsored a multi-site symposium in partnership with The Mayo Clinic
  • January 2007 - Held the second annual Many Faces of LBD Symposium

2006

  • December 2006 - Approved new corporate branding
  • October 2006 – Re-staffed the Atlanta office with an Interim Executive Director and established a staffing plan for 2007
  • September 2006 – Held our first major Strategic Planning Session
  • August 2006 – Launched a website survey to gather caregiver feedback
  • May 2006 – Testified at an FDA advisory panel meeting
  • February 2006 – Attended and participated in the “PDD/DLB at a Crossroad Symposium”
  • January 2006 – Held the first annual Many Faces of LBD Symposium

2005

  • December 2005 - Announced a $500,000 grant from the Mangurian Foundation
  • November 2005 - Moved to Atlanta, Georgia
  • October 2005 - Hired first employee
  • April 2005 - First LBDA exhibit at a scientific/medical conference

2004

  • December 2004 - Published the first printed informational brochure on LBD
  • November 2004 - First edition of the LBDA Newsletter
  • July 2004 - Scientific Advisory Council created
  • May 2004 - Completed registration as a nonprofit in all 50 states and DC
  • March 2004 - Toll-free helpline launched
  • February 2004 - Received 501(c)(3) designation from the IRS
     

2003

  • August 2003 - First Board of Directors meeting and LBD Caregivers meeting
  • July 2003 - Organization incorporated as a nonprofit in the US