You Can Help Increase LBD Knowledge

Participating in clinical trials is one of the ways YOU can help advance the growing body of knowledge about Lewy body dementia. And the benefits to you can be great! In addition to receiving highly specialized care, some clinical trials give you access to medications that are not otherwise available.

The LBDA encourages eligible patients to educate themselves about clinical trials and to participate in those with promise to develop much needed new therapies. The only pathway to new approved therapies for LBD is through clinical trials, and the LBDA urges patients to be partners in the process of new treatment development through their participation in clinical trials.

• If you would like to learn more about clinical trials, the Alzheimer’s Association has prepared an excellent overview on the subject, found here.
• Any decision to participate in a clinical study should be made in conjunction with advice from health care professionals, so talk to your doctor first!

The following sites also list many clinical trials seeking patients with dementia and/or movement disorders:

ClinicalTrials.gov
Provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.

Alzheimer's Association
Lists selected trials in treatment and prevention of Alzheimer's disease from ClinicalTrials.gov. Trials included here are recruiting participants at more than one U.S. location.

PDTrials.org
Lists up-to-date information on Parkinson's disease clinical trials currently enrolling participants in the U.S. by symptom and location, as well as the latest news and views on what's happening in the world of Parkinson's trials.

Center Watch
Clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA.

A word to researchers:

Investigators who wish to disseminate information about clinical trials being funded by governmental agencies, academic institutions, and private industry, are encouraged to access the Protocol Registration System website and follow the instructions for registering and posting clinical trial information.

LBDA promotes research relating to Lewy body dementias, but LBDA does not advertise and promote specific clinical trials unless the trials are funded by LBDA or the National Institutes of Health and its related entities. Clinical trials funded by private industry can be registered and promoted on the ClinicalTrials.gov Web site.